Aa
Everyday I struggle
Everyday I struggle with the decision to treat now or wait, but I'm getting all the test in order so when it's time I'm ready. This truly feels like the hardest thing I've ever had to decide.
Streamline I have tried very hard to make sense to you over the course of this thread. You have a dire disease and your liver is almost gone past the point of no return. Whether you have had this disease for a year or twenty years - the damage has been done already and you are out of time.
There is really nothing more useful to add to the conversation. If you do not want to treat and do get to end stage liver disease, we have done every single thing to prevent this that is humanly possible - over over and over again.
It is quite frustrating to watch someone not 'get it'. I have seen people die from this and understand the ramifications of where you are. You do not yet seem to but I hope you do before it is too late.
I wish you were stage 2 or even a 3 and it didn't really matter but as a beginning cirrhotic who is not listening to sage advice, I'm sorry if you do not understand why this would irk some so much but I have given you the best advice possible. All of the others have too and said the same thing.
Now, one can only hope that you realize and do something about it because really there is nothing else to add.
There is really nothing more useful to add to the conversation. If you do not want to treat and do get to end stage liver disease, we have done every single thing to prevent this that is humanly possible - over over and over again.
It is quite frustrating to watch someone not 'get it'. I have seen people die from this and understand the ramifications of where you are. You do not yet seem to but I hope you do before it is too late.
I wish you were stage 2 or even a 3 and it didn't really matter but as a beginning cirrhotic who is not listening to sage advice, I'm sorry if you do not understand why this would irk some so much but I have given you the best advice possible. All of the others have too and said the same thing.
Now, one can only hope that you realize and do something about it because really there is nothing else to add.
Yes James that was how the first doctor approached me. With total scare tactics
NY Girl as far as agenda, you'll find none here. I'm just trying to do the best I can for myself. I think things through, maybe that doesn't seem normal to you. I'm sorry for that. I posted here because I'm scared yes. This is a life changing decision. At the point I start to treat my whole life will change and at my age that is not an easy thing to do. I just want to kill this virus the first time around. I'm sorry you're so much stronger then I am, but we are all different.
I put this in the back burner for two years because my health was good and I was feelng well. Well those things have changed and I am taking it seriously. I don't need the sarcasm. So please don't post if you don't have anything nice to say. So sorry I annoy you so much......
NY Girl as far as agenda, you'll find none here. I'm just trying to do the best I can for myself. I think things through, maybe that doesn't seem normal to you. I'm sorry for that. I posted here because I'm scared yes. This is a life changing decision. At the point I start to treat my whole life will change and at my age that is not an easy thing to do. I just want to kill this virus the first time around. I'm sorry you're so much stronger then I am, but we are all different.
I put this in the back burner for two years because my health was good and I was feelng well. Well those things have changed and I am taking it seriously. I don't need the sarcasm. So please don't post if you don't have anything nice to say. So sorry I annoy you so much......
James now that is truly the most interesting post in this entire thread. Why we try so hard and give so much time trying to help sometimes escapes me when I see things like that. Sometimes you just gotta wonder how much you are being played or what the agenda really is but just know we have done all we can at this point.
Interesting in another of you posts in a "so scared" thread you said in 2006 your doc told you that you have a year to live. Stange.
I've been diagnosed as stage 3-4, which is pretty close if not the same as you. I tx'd 88 weeks (gotcha by a few, Brent) and relapsed.
I see the appeal of waiting for telaprevir, but like nygirl said, there are no guarantees when it will come out. If you tx'd now, you're likely to give your liver a break even if you relapse, which would be a very good thing.
Another option is to tx for 4 weeks and see if you RVR, and quit if you don't. If I remember correctly, RVR on SOC has the same SVR percentage as telaprevir. If you do RVR on SOC, then you get to miss out on that lovely telaprevir rash.
smaug
I see the appeal of waiting for telaprevir, but like nygirl said, there are no guarantees when it will come out. If you tx'd now, you're likely to give your liver a break even if you relapse, which would be a very good thing.
Another option is to tx for 4 weeks and see if you RVR, and quit if you don't. If I remember correctly, RVR on SOC has the same SVR percentage as telaprevir. If you do RVR on SOC, then you get to miss out on that lovely telaprevir rash.
smaug
On May 3 2010. You said your Doc said you 4-5 years to live w/o treatment. Now he's telling you to wait 6 months for a drug that might not be approved ? Seems like your cutting it pretty close.
For me after my biopsy doc had a very serious tone, and told me I was stage 3, you should start treatment. Not a second past and I said "write the srip when can I start". I never could and never will be able to understand why people question treatment. It's not fun but it's doable ! If you would have started 6 months ago you be half way through ! But instead now you have 3 1/2 to 4 1/2 years to live.
Time to make some pancakes with extra butter for my RIBA. BTW I skied powder all morning on 12/6 in Breckenridge Colorado while going through treatment smiled hooted a laughed the whole time. You can do it !!
For me after my biopsy doc had a very serious tone, and told me I was stage 3, you should start treatment. Not a second past and I said "write the srip when can I start". I never could and never will be able to understand why people question treatment. It's not fun but it's doable ! If you would have started 6 months ago you be half way through ! But instead now you have 3 1/2 to 4 1/2 years to live.
Time to make some pancakes with extra butter for my RIBA. BTW I skied powder all morning on 12/6 in Breckenridge Colorado while going through treatment smiled hooted a laughed the whole time. You can do it !!
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