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439539 tn?1233465815

Insurance Denied/ No Liver Failure

My ins.denied me because my hepc 1a,gr.1, stage 0, doesn't show liver failure.Drs. office said, don't worry they'll take care of it.My husband has crohns dis., and I have to get treated.I feel as if I don't treat right now and he would get it somehow I would be to blame.I know it would be a death sentence for him.Has anyone had this happen and them, then insurance co. said ok ?I'm new to forum and really don't ask alot of questions but would really appreciate any knowledge on this.I'm worried and another weekend of waiting.

Andiamo I want to say as a newbie on this forum I really admire you.Almost 20 yr's of hurry up and wait for you.8 x's treating.Wow! You are in my prayers.As a newbie I read with a grain of salt.I also read and do alot of research.I respect the people on here that has been through this, done that, but they haven't moved on.The ones that cure and move on that's great .To me the people that care enough to hang here and help people like me are the pure heppers oops helpers.That was hard to say.heppers.Anyways I respect you guys and want to say thank you and you know who you are.                                                                Tammy
7 Responses
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439539 tn?1233465815
Thank you .It's nice to meet you.You have a good weekend.I'll ask later about when you should start treating and stuff. I really want this thread to go away.

Tammy
Helpful - 0
476246 tn?1418870914
Wasn't implying that you had bad insurance, but if they don't want to let you treat, you might have to look into different options. That's why I suggested some other sources of obtaining the meds.  But if your doctors office say they will take care of it, maybe you shouldn't be worried after all.

I live in Denmark and treatment and meds are free, so I wouldn't know anything about the procedures of insurance companies in the US.

I hope that things will work out well for you and your husband. Sometimes it is difficult to stay positive, with this disease. There are a lot of frustrations, etc. Just wanted to let you know that we are many here on this forum who support each other. So you are always welcome, any time.

Marcia
Helpful - 0
439539 tn?1233465815
Thanks for your comments.I am new here and it seems as though every time I post a thread, it ends up not being what I wanted to say.I do have good insurance and I'm sure if we put up enough stink about this they will end up saying yes.I thought maybe someone had recently been through it and I would know and not have to have that thought on my mind all weekend.I know insurance companys.don't care.It's all about the all mighty $.Again thanks to all but again I want to hit DELETE .If anyone else reads this just hit your back arrow and this will soon be gone.

Tammy            
Helpful - 0
476246 tn?1418870914
Sorry to hear about your difficulties. I cannot answer your question, but just a thought. You could try some other alternatives of receiving free medication. I'm not sure how that works, but there are many on this forum who do. There are trials, one can apply to and other options.

Marcia
Helpful - 0
439539 tn?1233465815
I guessed I jumped ahead of myself.I am asking, if my ins. said no to cover treatment for hepc because I don't have signs of liver failure , what are my chances of the ins. saying yes to tx if my Dr. and I pursue this?
Another weekend of waiting=Meaning waiting to hear from ins.yey or ney.
I apoligize for any misunderstanding.I have been married 30 yrs.Husband and daughter neg.Husband has had crohns for 25 yrs.He's had a life of pure hxxx.A few yrs. ago he had 4 ft. of his intestine removed.His quality of life is precious to me and I feel as though through all the research on contracting HCV, there's still a slim chance he could contract it.I'm going to treat now because of that.Also at 50 I feel as though later down the road I may not feel as good as I do now.I have other issues, RA etc., I feel are caused by HCV and the sooner I put up the fight, the better.SVR !
I read and read and stories such as yours HectorSF , June6th, etc.make me realize how hard a fight you guys have had and I feel the sooner the better .I wish the best for all of us who have this take every second of your time funky thing we have.I just want it gone.
Thank you for answering my confusing question.I do wish the best for you guys and all on this forum.Thank you,                         Tammy
Helpful - 0
Avatar universal
I also have no damage and was denied treatment.  What happened to me was I did get approval and was a nonresponder so my doctor wanted to switch me from pegatron to pegasus in the middle of treatment  to see if it would take hold and they actually denied me.  So I feel cheated like i didn't really give it a full shot.  The insurance company said it was not medically necessary.  If it is any comfort to you I am sickly even 6 months after only three months on treatment.  My viral load is way higher and so are my liver enzymes.   So if you feel good and have no damage just try to enjoy your life.  I have had this for 35 years and I hope I can go another 35.  Also I have been married 22 years and have 3 kids.  Think about it (childbirth) and my kids are fine.  I just found out a year ago I am sure my kids have used my toothbrush throughout there lifetime.  My kids are grown.  This disease has to hard to catch
Helpful - 0
446474 tn?1446347682
Tammy, you say you are worried about another weekend of waiting. I don't understand. This disease takes decades to progress. This disease doesn't progress in a weekend or a week. It take decades.

Can you explain why you think you have to treat now?
Your liver is inflamed but you have no liver fibrosis (scaring).
It will probably take at least another decade or two for your fibrosis to progress to stage 4. There will be new more effective in the next 3-5 years. In ten years who knows? Maybe cure? As a genotype 1 you will need to treat for at least 48 weeks now to clear the virus.

You say your husband has crohns disease and he would get HCV somehow from you. You've already had the virus for a number of years at least. Your husband hasn't gotten it yet. Correct? Many couples with one HCV infected partner have lived together for 10 - 20+ years have never given it to the other uninfected one. HCV is not a sexual transmitted virus. The way it is spread is blood to blood. So don't share razors, toothbrushes, anything that has blood on it that could somehow get into his blood. It is not easy to spread this virus. I think you are worrying about something that is unlikely to happen.

Best of luck whatever you decide.
Hector
Helpful - 0
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