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Hands and body a little shaky - ?
For the last few days, I've been shaky. My hands are shaky, I have lightheaded moments and my body feels kinda shaky as in I feel like a wobbly old lady sometimes, a little off balance. (Well, I'm off balance in other ways but I mean physically.) Going down stairs is a bit of a challenge and I take them carefully.
My hgb was 10.0 last week despite 4 weeks of procrit by then and I have my monthly at the moment. Does "blood" loss contribute at all to a decrease in hgb?
I see the doc tomorrow so I'll mention it .. just wondering if this is familiar to anyone and what it indicates? Just feeling very bizarre lately.
Trish
My hgb was 10.0 last week despite 4 weeks of procrit by then and I have my monthly at the moment. Does "blood" loss contribute at all to a decrease in hgb?
I see the doc tomorrow so I'll mention it .. just wondering if this is familiar to anyone and what it indicates? Just feeling very bizarre lately.
Trish
Trish,
I would say I felt better about 3 days after starting. I had started the synthroid around week 22 and continued to week 50 and tried to taper off but because of going back to full dosages at the last 4 weeks of soc it crashed again and then tried again to tapered off at week 52 for the final week and stopped at 53. There was a dip and then an increase in emotions and minor sx but the thyroid started working on its own around week 54 when the lump at the base of the throat had subsided.
At the last blood work my tsh was sitting at 4.5 so by the old standards .5 to 5.5 I am in the range on the high side, but the new range of .3 to 3.0 I am over and in the hypo range but will know where I’m at in a couple of weeks. Yikes! INF reduction, riba reduction and now Procrit, seems a little a** backwards to me. Sounds like everything went to hell in a hand basket and you are now in the hepper zone. Hang in there, it seems that around the 24th to the 30th week is when the total saturation point hits for most, and the pendulum swings to the toxicity side and when the harsher side effects hit the weakest links of our systems. Hope you feel better soon!
jasper
I would say I felt better about 3 days after starting. I had started the synthroid around week 22 and continued to week 50 and tried to taper off but because of going back to full dosages at the last 4 weeks of soc it crashed again and then tried again to tapered off at week 52 for the final week and stopped at 53. There was a dip and then an increase in emotions and minor sx but the thyroid started working on its own around week 54 when the lump at the base of the throat had subsided.
At the last blood work my tsh was sitting at 4.5 so by the old standards .5 to 5.5 I am in the range on the high side, but the new range of .3 to 3.0 I am over and in the hypo range but will know where I’m at in a couple of weeks. Yikes! INF reduction, riba reduction and now Procrit, seems a little a** backwards to me. Sounds like everything went to hell in a hand basket and you are now in the hepper zone. Hang in there, it seems that around the 24th to the 30th week is when the total saturation point hits for most, and the pendulum swings to the toxicity side and when the harsher side effects hit the weakest links of our systems. Hope you feel better soon!
jasper
It took 2 days for me to start noticing the effects of the beta blocker, and by day 4 I began to feel less fatigued and the tremors were almost gone...After about 10 weeks of being hyperthyroid, mine "flipped" over a 1-2 week period to hypothyroid...(The change was pretty dramatic...I felt BAD!) I've been on Synthroid to help the levels stabilize for 7weeks now, and my thyroid is still adjusting...I'm running the tiniest bit hyper right now and was told that it will stabilize (hopefully go back to normal) within a few months...I think as long as you're only diagnosed with simple thyroiditis, the thyroid is expected to recover...(((((((((((((((((((HUGZ))))))))))))))) ~Melinda
Melinda: I didn't know to ask about the T-3 and T-4 levels. All I know is my TSH is .05. They called in a script to my pharmacy for beta blockers same day and were trying to get through to my doc same day to get me into an endocrinologist. I think part of that is my trial nurse is going on vacation for two weeks and she likes to wrap things up before she goes. The speed with which they were moving had me a bit alarmed but also grateful.
The doc is being careful with the epogen and as tedious as it's becoming, the weekly blood tests are monitoring everything until I get more stabilized away from areas of concern.
I've actually been on a 25% interferon reduction for three weeks now as my ANC and lymphocytes finally dropped below allowable levels and I'm just taking that a step at a time. Still UND at 24 weeks since 6 weeks.
Melinda and Jasper: Question...how long does it take the beta blockers to kick in and settle down the shaking? Now that you're done treatment or before you were done, did your thyroid go back to normal?
Thanks for your input, it's been helpful.
Trish
The doc is being careful with the epogen and as tedious as it's becoming, the weekly blood tests are monitoring everything until I get more stabilized away from areas of concern.
I've actually been on a 25% interferon reduction for three weeks now as my ANC and lymphocytes finally dropped below allowable levels and I'm just taking that a step at a time. Still UND at 24 weeks since 6 weeks.
Melinda and Jasper: Question...how long does it take the beta blockers to kick in and settle down the shaking? Now that you're done treatment or before you were done, did your thyroid go back to normal?
Thanks for your input, it's been helpful.
Trish
Just curious...Do you know what your T-3 and Free T-4 levels are (thyroid)? If both of these are elevated and your TSH (Thyroid stimulating hormone) is below 1.5 (range differs slightly depending on tests) you are very hyperthyroid (excess thyroid hormones)...Now, if the TSH elevates and the other two are low, you are hypothyroid (too little thyroid hormone).
The Drs have to be very careful with the Epogen and Procrit meds...Too much can inflame your spleen, causing it to potentially rupture (because it is trying to deal with an overload of RBC) and too many red blood cells (RBC) can cause thickened blood and clotting as well as circulation problems...One of those meds that more is not always better...Hope this helps... ~Melinda
The Drs have to be very careful with the Epogen and Procrit meds...Too much can inflame your spleen, causing it to potentially rupture (because it is trying to deal with an overload of RBC) and too many red blood cells (RBC) can cause thickened blood and clotting as well as circulation problems...One of those meds that more is not always better...Hope this helps... ~Melinda
LOL, always loved the elevators especially when going down and the stopping, always thought if I had a cut on my big toe I would bleed out. On the epo, if I remember jmjm and alagirl had some discussions on the tempering of epo during treatment which I came out strongly against but in the heat of battle anything is lobule to come out. Hope things are holding on the next test. Been wondering why you’ve been quiet lately. Keep on Trucking…
jasper
jasper
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