Aa
Has anyone taken Procrit (epo) before their hemoglobin went to 10?
Hi,
My symptoms are pretty severe lately and am considering a drop in my meds but am also thinking that Procit may help get me out of the water. My doctor is under the same standard as most that it has to drop below 10. Mine has dropped from 14.5 to 12 in less then 3 months. I have extreme fatigue, heart pressure and palpatations, very dizzy when I stand, very short of breath, heart beating out of my chest feeling, head pounding etc. Pretty much totally bed ridden. Geno 2B - UND at 3.5 wks - 6 wks into tx.
My doctor responds well to any research studies or articles - do any of you happen to have one that indicates it's OK to give procrit for readings that are above 10?
Thanks,
Mikki
My symptoms are pretty severe lately and am considering a drop in my meds but am also thinking that Procit may help get me out of the water. My doctor is under the same standard as most that it has to drop below 10. Mine has dropped from 14.5 to 12 in less then 3 months. I have extreme fatigue, heart pressure and palpatations, very dizzy when I stand, very short of breath, heart beating out of my chest feeling, head pounding etc. Pretty much totally bed ridden. Geno 2B - UND at 3.5 wks - 6 wks into tx.
My doctor responds well to any research studies or articles - do any of you happen to have one that indicates it's OK to give procrit for readings that are above 10?
Thanks,
Mikki
Hi nygal,
Guess I should elaborate a bit.... I understand what your saying and totally agree with you but my situation is a lot more complex. I have severe RA and am on biogenetic injections that amplify the effects of the Peg. I have also had 2 episodes of autoimmune syndrome - a VERY scary event that only happens to people with RA on tx. Every joint in your body flares at once...it is more pain then anything you can ever concieve. You literallty cannot move. It lasted 8 hours and stopped. There is a 4% chance that the next time it will NEVER stop and I will be that way the rest of my life. My docs were going to pull me off all meds when it happened but I talked one of them into the reduction and am very OK with it. I refuse to end up coming out of this in worse shape then I came in.
I have done a GREAT deal of research and have 2 of the best Hepatologists in Southern California. I know what the ranges are in respect to Body mass and I am in the perfect relationship right now. My weight is 45 kg - the best range for the riba is 13mg per kg - that means I will need 585 and I am taking 600. The Peg is based on a 200 lb person - I am 1/2 that and could do fine on 90 but am staying at 145. I am still UND for now.
I also have RA anemia which is not really seen in your blood test - it is seen in your bone marrow...this complicates things as well and procrit will make it worse...I also have cardiac issues and the list goes on.
So I'm rather unique and I agree that if I were a normal person I would totally stay the course, especially if I were a geno 1. (I am a 2b and was UND at 3.5 wks - so have a much better success rate). Thanks for your concerns, it really does help when I'm having days like today...mega migrain...laying in bed in the dark with sunglasses on just to handle seeing the computer screen on my lap and having to take that shot tonight (and this is the best day of the week - ha) And knowing it is going to blow my head outta the water and I'll be pucking all night and wanting to do like the doc said and take 90 - but thanks to your pep talk - I'm going to do the 145....ugh
Thanks again,
mikki
Guess I should elaborate a bit.... I understand what your saying and totally agree with you but my situation is a lot more complex. I have severe RA and am on biogenetic injections that amplify the effects of the Peg. I have also had 2 episodes of autoimmune syndrome - a VERY scary event that only happens to people with RA on tx. Every joint in your body flares at once...it is more pain then anything you can ever concieve. You literallty cannot move. It lasted 8 hours and stopped. There is a 4% chance that the next time it will NEVER stop and I will be that way the rest of my life. My docs were going to pull me off all meds when it happened but I talked one of them into the reduction and am very OK with it. I refuse to end up coming out of this in worse shape then I came in.
I have done a GREAT deal of research and have 2 of the best Hepatologists in Southern California. I know what the ranges are in respect to Body mass and I am in the perfect relationship right now. My weight is 45 kg - the best range for the riba is 13mg per kg - that means I will need 585 and I am taking 600. The Peg is based on a 200 lb person - I am 1/2 that and could do fine on 90 but am staying at 145. I am still UND for now.
I also have RA anemia which is not really seen in your blood test - it is seen in your bone marrow...this complicates things as well and procrit will make it worse...I also have cardiac issues and the list goes on.
So I'm rather unique and I agree that if I were a normal person I would totally stay the course, especially if I were a geno 1. (I am a 2b and was UND at 3.5 wks - so have a much better success rate). Thanks for your concerns, it really does help when I'm having days like today...mega migrain...laying in bed in the dark with sunglasses on just to handle seeing the computer screen on my lap and having to take that shot tonight (and this is the best day of the week - ha) And knowing it is going to blow my head outta the water and I'll be pucking all night and wanting to do like the doc said and take 90 - but thanks to your pep talk - I'm going to do the 145....ugh
Thanks again,
mikki
Ps Mikki....if you can try not to reduce your meds please! Under absolutely no circumstances should we ever allow someone to trick us into doing that. You're already at week 6! Week 6! You've only got to go to 24! You were UND at such an EARLY date that you know full well you are going to beat this thing! If you can just hold on a little bit more...you'll definitely have it. Don't take a chance and mess around with the meds. If your immune system hasn't had a long enough time to get into the groove and you drop some meds and the virus has a chance to come back in..................next treatmenT you'll have to do 48 weeks MINIMUM!
Hang in there but don't drop your meds. Just don't you do it no matter how bad you feel! SVR is the goal and it hurts like hell now but.............if you hang in there it's almost all over already you are one of the "lucky" ones that only do 24 weeks...I would have given anything when I was into the 70th+ week of treatment to have stopped so long before!
Look at all the people who have viral breakthrough or relapse that don't even drop any dosages! it's not worth it...you'd be so upset if you got back a PCR and it had a viral load next to it!
Don't take a chance with it. Just don't. YOU CAN DO IT HANG IN THERE! I'll stay right here and push you along but do NOT drop any of your meds. 12 is a great number you can live with it.........just give your body time to acclimate to it and you'll see - the human body is unbelievable and it can adapt to anything....just give it some time to be ablel to do so!
YOU CAN DO IT!
Hang in there but don't drop your meds. Just don't you do it no matter how bad you feel! SVR is the goal and it hurts like hell now but.............if you hang in there it's almost all over already you are one of the "lucky" ones that only do 24 weeks...I would have given anything when I was into the 70th+ week of treatment to have stopped so long before!
Look at all the people who have viral breakthrough or relapse that don't even drop any dosages! it's not worth it...you'd be so upset if you got back a PCR and it had a viral load next to it!
Don't take a chance with it. Just don't. YOU CAN DO IT HANG IN THERE! I'll stay right here and push you along but do NOT drop any of your meds. 12 is a great number you can live with it.........just give your body time to acclimate to it and you'll see - the human body is unbelievable and it can adapt to anything....just give it some time to be ablel to do so!
YOU CAN DO IT!
My hemo dropped six full points in just over one week. It was literally hell for me. From 15+ down to 9. My doctor STILL didn't think I needed Procrit.
Of course, I insisted that i did and I won. He had wanted to send me for a chest xray to figure out why I was having trouble breathing and why I kept fainting.
Doctors...........................go figure.
Still at 12 that is a very high number and your insurance might refuse to pay for it. I would start with them...........find out if you can get approval having such a high hemo number. You've had a very slow decline honestly and I'm not sure why you are feeling the effects that badly...are you sure there is not an underlying issue that could be mimicking anemia?
Of course, I insisted that i did and I won. He had wanted to send me for a chest xray to figure out why I was having trouble breathing and why I kept fainting.
Doctors...........................go figure.
Still at 12 that is a very high number and your insurance might refuse to pay for it. I would start with them...........find out if you can get approval having such a high hemo number. You've had a very slow decline honestly and I'm not sure why you are feeling the effects that badly...are you sure there is not an underlying issue that could be mimicking anemia?
Bevy - You are always good for a chuckle when I need it most - laying here in the dark in bed with sun glasses on to stand the glare of the computer screen on my lap....mega migrain = AGAIN...to many meds in me - tummy erupting...yi yi yi
Thanks - needed that...
Brian - good to hear from you...I can always count on you (get it....count...like 1,2,3...never mind - I'm fruit loops right now).
Got to make it...got to make it....chug chug chug
Thanks - needed that...
Brian - good to hear from you...I can always count on you (get it....count...like 1,2,3...never mind - I'm fruit loops right now).
Got to make it...got to make it....chug chug chug
Hey cutems, I was gunna mail you some lead soled boots ( In case of high winds), but then I thought, WHO"S gunna help you lift your feet to walk. Just tie a rope around your waist and attach the other end to the leg of the kitchen table, so you don't blow off the hill on your patio. Or, you could put some bacon in your pocket so the dog can find you and fetch you home again? I'll tell you what you're welcome to some of my rump, but the boobs are still new enough that I'm not willing to share them, just yet. (Maybe when it gets a little hotter). I weighed 115 LBS, TWO X-MAS' AGO. The boobs are my consolation prize for having such a big butt. Somebody stop me!!!! I'll have more news 2moro, 2 wk.BT's and see dermatologist Re; mole on back. Later Punkin', hugs, Bv
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