Mother pasted HepC during child birth

[Luvbug77]

I just wonder if there were. Any women that passed their hep 2 there child during broth, I feel like a piece of crap that my son. Has 2 live w this,I luv my son wish this I could change 4 him

[BoceprevirGal]

  Are you saying that you did pass it on to your son, or that you dont know if you did or not?
  I have 4 children, but only my 21 yr old daughter has been tested, and she was negative.  I have one older son (age 30 yrs) who hasn't been tested yet, and I know he worries I may have passed it to him, becuz he mentioned it once, cuz he used my razor. I havent had my 11 and 13 yr old tested yet, because there are new meds coming out, within the next few yrs, that are much easier (less side effects) then what is currently available.
  It takes 20 yrs for Hep C symptoms to manifest, so I do need to have "a talk" with my 30 yr old...but he gets very volatile about manysubjects,and I know he is still angry with me about my ****** past: I had him when I was 20 yrs old, and went back to drinking and drugging, and didn't quit until he was 14 yrs old...I know, horrible.
   We all make mistakes, and I cant control the past, just the present and the future.  Speaking of the future, there is even a study out right now, where "the cure" consists of one shot. I hope that one works out!

[willbb]

It takes 20 yrs for Hep C symptoms to manifest,
-------------------------
I find this statement ..interesting

[mikesimon]

I'd suggest that you reconsider having your children tested. Chronic Hep C infection is associated with several extra-hepatic disorders and in my opinion there is more to be concerned about than just the health of the liver. Diabetes is 3 times more likely in patients infected with HCV. Non-Hogkins Lymphoma is another associated disease.

"Abstract

There is ample epidemiologic evidence for an association of chronic hepatitis C virus (HCV) infection with B-cell non-Hodgkin lymphoma (B-NHL). B-NHL subtypes most frequently associated with HCV are marginal zone lymphoma and diffuse large B-cell lymphoma. The most convincing evidence for a causal relationship between HCV infection and lymphoma development is the observation of B-NHL regression after HCV eradication by antiviral therapy (AVT). In fact, for indolent HCV-associated B-NHL, first-line AVT instead of standard immune-chemotherapy might be considered. Molecular mechanisms of HCV-NHL development are still poorly understood. Three general theories have emerged to understand the HCV-induced lymphomagenesis: (1) continuous external stimulation of lymphocyte receptors by viral antigens and consecutive proliferation; (2) HCV replication in B cells with oncogenic effect mediated by intracellular viral proteins; (3) permanent B-cell damage, e.g., mutation of tumor suppressor genes, caused by a transiently intracellular virus ("hit and run" theory). This review systematically summarizes the data on epidemiology, interventional studies, and molecular mechanisms of HCV-associated B-NHL.

http://www.medicinenet.com/hepatitis_c/page6.htm


The children of infected mothers are advised to get tested. For instance, if your child knew that he/she was infected it might be easier to impress on him/her the need for abstinence from alcohol. That alone could be very significant.

I simply see no upside in delaying testing your children. Hopefully they'll be clear but, if not, it's a lot better to know sooner rather than later.

Mike

[willbb]

Just to add to what Mike has posted


It is only recently that "Extra hepatic Manifestations "(other than the liver) are coming to light from having HCV.
It is not always "only "what fibrosis stage one has that may be factered into when may be the best time  to treat.

/emedicine.medscape.com/article/177792-clinical

Symptoms often first develop as clinical findings of extrahepatic manifestations of HCV and most commonly involve the joints, muscle, and skin. In a large study of the extrahepatic manifestations of HCV, 74% of medical workers with HCV infection demonstrated extrahepatic manifestations.[27] The most commonly occurring extrahepatic manifestations were as follows:

Arthralgias (23%)
Paresthesias (17%)
Myalgias (15%)
Pruritus (15%)
Sicca syndrome (11%)
In addition, sensory neuropathy has been reported as an extrahepatic manifestation in 9% of patients with HCV infection.[28] Risk factors for manifestations of extrahepatic chronic hepatitis C infection include advanced age, female sex, and liver fibrosis.

[BoceprevirGal]

  Yes, I should of said liver scarring symptoms~
this is from the CDC website:
What are the long-term effects of Hepatitis C?
Of every 100 people infected with the Hepatitis C virus, about
75–85 people will develop chronic Hepatitis C virus infection; of those,
60–70 people will go on to develop chronic liver disease
5–20 people will go on to develop cirrhosis over a period of 20–30 years
1–5 people will die from cirrhosis or liver cancer

[BoceprevirGal]

  Thanks, Mike. But I don't think they Treat children,who are without symptoms, with the current Triple treatment.
  I was thinking to get them tested in their teens, and if they test positive, to have them Treat with 2nd generation PI's, which should be available in a couple years hopefully.
  If our Family Practice had suggested it, I definitely would have gotten them tested.. They have known of my Hep C, for the last 20 some odd yrs, and suggested we test my daughter at age 16 yrs, which we did.(she was negative for-)
  If my children were showing any symptoms, which were indicative of Hep C or NHL, I would most definitely get them tested, asap. They dont play contact sports in school, so that is not a concern, either.
  

[asle]

" I havent had my 11 and 13 yr old tested yet, because there are new meds coming out, within the next few yrs, that are much easier (less side effects) then what is currently available."
"  I was thinking to get them tested in their teens, and if they test positive, to have them Treat with 2nd generation PI's, which should be available in a couple years hopefully. "

I don't know why you have to wait for new meds to come out.
It's just a simple blood test that will give you and your 2 youngest the answer once and for all.

[asle]

I'm getting a little tired of these over the top, spurious and pulled out of a hat comments that seem to be proliferating lately. Not just by you, but there are others.
It's just not true that

" It takes 20 yrs for Hep C symptoms to manifest".

It may take 20 years from infection to symptomatic liver disease, which is very different.

"Hepatitis C infection is rarely diagnosed in its early stages. It is often not recognized until its chronic stages, when it has caused severe liver disease. Hepatitis C infection is often referred to as the “the Silent Epidemic,” because a typical cycle of the disease from infection to symptomatic liver disease may take as long as 20 years."

It MAY take as long as 20 years, it may take longer. Or it may take much less than 20 years.

Read more: Viral Hepatitis: Hepatitis C: The Silent Killer | Infoplease.com http://www.infoplease.com/cig/dangerous-diseases-epidemics/hepatitis-c-silent-killer.html#ixzz2bSFTug8S

[BoceprevirGal]

  I'm not sure it would benefit a child, from a psychological stand-point, to
begin their Middle School yrs with the knowledge that they have the Hep C virus, Asle?
  Can you explain to me why you feel it to be necessary for us to know now, rather when they are a bit older, say..16 yrs old?  If testing for all people became mandatory, and a law, then I would do so.
  When HIV first came out, Activists fought hard for the rights of people who were suffering with that virus, to avoid situations where discrimination could crop up.  The Hep C community hasn't grouped together and organized as strongly~
  

[ActingBrandNew]

This forum can be awesome at times...and others its just sad. People will make mistakes in there posts.....it happens...but why do threads have to get off topic so people can play MH censor. It doesn't make any sense to me. Yeah, I know....its about the "integrity" of the forum....but what about those newly diagnosed people scared to post because they are afraid they will say the wrong thing and get corrected....harshly.  It took me almost a year to finally get the guts to post a question because of that reason...so what if someone knows more than the next person...what about those folks who no NOTHING.

Heres the OP's question

"I just wonder if there were. Any women that passed their hep 2 there child during broth, I feel like a piece of crap that my son. Has 2 live w this,I luv my son wish this I could change 4 him"

I myself have no clue what the answer is. But hopefully someone will come along and help this lady out without all the "EXTRAS"

[mikesimon]

Excuse me.
No, I am not a mother who passed their HCV to a child but I saw something that I thought was important so I posted.
Apparently you also thought you had something important to say which wasn't responsive to the OP.

"....but why do threads have to get off topic so people can play MH censor...."

"Censor"? That is precisely what you appear to be playing.

Mike

[BoceprevirGal]

  Well, I hope we didn't scare off the OP because I would like to let her know that it is possible for her to change, for her son, and would like to support her with that decision.
    

[mikesimon]

If we cannot have differences of opinion and have the freedom to challenge the accuracy of information and the soundness of advice without scaring a new member off then this board is not what it should be. Though compassion and support are crucial, even more important, in my opinion, is accurate information and sound advice

[willbb]

"I just wonder if there were. Any women that passed their hep 2 there child during broth, I feel like a piece of crap that my son. Has 2 live w this,I luv my son wish this I could change 4 him"
------------------------
Yes this means of transmission can and has happened albeit rarely (approx 6% and somewhat greater in those co-infected with HIV(below)

Hopfully you find this article useful and if your son Does have HCV the future looks very promising in HCV therapy

Best to you ...
Will

..http://www.adhb.govt.nz/newborn/guidelines/Infection/HepatitisC.htm

Vertical Transmission
Infrequent (as opposed to vertical transmission of Hepatitis B in the pre-vaccine era).
Rate approximately 6% in HCV viraemic, non-HIV infected mothers. May increase to ~ 15% in HIV positive mothers.
Majority of infant infections probably acquired during exposure to infectious blood at delivery (infants not viraemic until several weeks post-delivery). However, there are no convincing studies at this time demonstrating that Caesarean section should be recommended.
Transmission from breast milk has not been documented, although virus RNA can be found in breast milk. Currently there are no recommendations concerning breast feeding by HCV positive mothers. This should be discussed with the women but breast feeding is not contraindicated.

[willbb]

Also there are a couple of members here who have had children with HCV

They do not post often ,however hopfully they see your thread and respond

again   best of luck..
Will


Mike...keep those fins strong

[dontworry_behappy1]

Which one of you is a women who passed on Hepatitis C to their child during birth was your question?

Apparently, none!  I'm so sorry for your pain.  It must be very difficult to deal with.  Hepatitis C treatment is getting better and better.  Your son is still young and there is currently treatment for hepatitis C.  The best thing you can do for your son is stay health and both of you see a doctor about your Hepatitis C.   Please ask questions.  I will try to do my best to answer all of them.  

A Mother

[ActingBrandNew]

Im just going to a$$ume here (which I will probably be chastised for not siting my sources) that the OP may not know what "HCV-induced lymphomagenesis" is or what "mutation of tumor suppressor genes, caused by a transiently intracellular virus" is. She was simply asking "was there any women that passed HCV to there children"....and was looking for support.

Your definitely entitled to write whatever you want and challenge whatever data you feel inaccurate.... as Im entitled to point out that your argument has nothing to do with the OP's question. Sorry if my statement of being a MH censor sounded hypocritical....maybe my choice of words wasn't right....my bad.

[child24angel]

Boce girl , simply not true , taking 20 years to manifest .
Not one bit. Im not here to argue, but this statement is false.

I am a mother who did not pass HCV , rather Hemophilia to my son
in turn, through blood products in the early eighties he got HCV.
My brother also got Aids, HCV, HPV, also hemophiliac.

My brother suffered greatly, managed as well as possible, died in my arms.
He was Thirty.

My son died at 26 from HCV.  He could have treated his Junior year
but he elected not to.  I wish he would have. Maybe he would still be here.
He had symptoms early on, I just did not know right away . He was tired a lot for a child and young adult and was itching forever. These are just a few.

Please, no harm done to get a blood test, you need to know if nothing else
to protect other children from possible exposure.Though hard to get , unless blood to blood. it is possible with crazy things children do.

Yes , I spread the word to schools, etc..... since my son would bleed internally and externally at the drop of a hat, I had the responsibility to keep my daughter and other children safe.  Once my son was old enough he knew, not to fool around with blood, to,clean up etc.

In addition, other things can happen not just the liver.
Good luck to you, and your children .  
Please everyone needs to be tested!!!! it is THAT IMPORTANT

[BoceprevirGal]

  Thank you for sharing your story with me, and I am so very sorry for your losses, both brother and son, words cannot express, of course.
   I didn't have Hep C, when I gave birth to my now 30 yr old, be he did mention that he used my razor once, so I need to have another conversation with him, concerning how he needs to go and get tested, I have kept him updated on my Tx and subsequent SVR status, and his step-dad has just now finished a much easier Tx, so I need to broach the subject again.
   I do bring the younger two children to my Hep C Support Group, where my Tx Doctor leads a very educational seminar, about subjects such as Hep C transmission, so they are aware not to share things like finger-nail clippers, razors, or any blood swapping dare-devil stunts, such as "blood-brothers" finger prick.
   I am planning on getting them tested, in the near future, and I feel that everybody should have a Hep C Antibody test, say, every 6 yrs. The test is inexpensive, and we have clinics here in NorCal, that give a free Hep C antibody test.
  

[Luvbug77]

Hello I was wanting 2 talk bout telling the schools, my sons hep Dr said up 2 us parents 2 tell, he said lots people dnt think the right stuff bout it, I got my son test asap  so we'd  know, but only like 4 people in our life know, I dnt want my son treated wrong cuz something I did, life is crazy enuff, I'm sry 4 ur lose, as soon as he can n treated & his Dr say we r gonna treat it will b a while since he is only 3,

[orphanedhawk]

My kids were tested as soon as I was diagnosed and neither of them has it.

Although it's understandable to feel bad if you passed it on to another person, if you weren't aware that you had it, well then you are simply making yourself feel bad about something that cannot be changed.

I think it's important to test them, simply for their medical records.
BO:  Don't you think you should know if they had an accident, for example?

[BoceprevirGal]

Hi OH, BO here~ (heh)
I did a tad bit of research, and found this study to be interesting:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2151778/

Conclusion
Most children chronically infected with HCV are asymptomatic and present only mild biochemical evidence of hepatic injury. Spontaneous clearing of the virus occurs occasionally. Autoantibodies are common in HCV patients. The natural history of chronic hepatitis C in children differs from that in adults since HCV infection is relatively benign, induces mild changes in the liver with a low level of fibrosis and a low rate of progression and is rarely associated with severe or decompensate liver disease.

  I think I will get a CBC and a Comprehensive Metabolic Panel on them
though...good looking out, Oh.  If something abnormal comes up, I will have them tested.  I can definitely see the 12 wk Sofosbuvir Tx very doable, for a  teen. But I am glad the chance is only 6%.
   I went to a High Risk O.B., for my last 3 pregs, after finding out I was Hep C positive. The births were very healthy, no cuts on the babies, etc, although it is still a mystery how Hep C is transmitted maternally.
   This is a large Forum, full of Hep C pos Moms...anybody else here planning on having their children tested?
  

[belle19]

i've had 2 boys while i had hep c and neither one of them have it.  thank god.  belle

[his3707]

I was diagnosed in 2009. I have  2 sons aged 13 and 10 at the time.  I had them tested right away.  My 13 year old tested + AB.  they could not get a VL or Genotype.  My 10 year old tested Neg AB. Believe me, I was horrified at the time all this was happening.  I felt so bad about it.  But I never intentionally did anything to hurt anyone.  If anyone should feel bad about people dying from HCV it should be our Government, insurance companies and the medical doctors for not giving us the option when they knew it was out there but ignored it and were just plain ignorant about it. Unbelievably   A lot of them still are. and so is the public in general.  
I did not do the followup 6 months later which they recommended to me to have them both retested.   My oldest   he is 17 now and I am going to have him retested in 2014.  He is a senior in  highschool this year.  There was no recommended treatment at the time anyway for someone under 18.  Depending on the individual child, I believe there can be a tremendous negative phycological effect to know that you do have a communicable disease at that age.  Especially one like HCV.  Im going with he doesnt have it for now but he knows to act like he does as far as sharing personal things etc.  He knows not to share anyway regardless.  Also if he bleeds to be careful not to let anyone get into it. He should do that anyway regardless.  everyone in my family follows those rules now. Everyone should follow those rules.  About knowing if you are in an accident or something, the medical community treats everyone like they are pos for everything.   I dont know if I exposed my son to HCV.  He has had one surgery for tonsil removal.  But it is a coincidence isnt it?  I asked my OB doc to test me for anything that could be passed to my son from me.  17 year old was born in 1996 by cesarean after 19 hours of labor. He had a scrape on his head from trying to get into the world.  the AB testing was available when I got preg in 95.    My doc is dead now so I cant ask him why I wasnt tested for that when I was tested for everything else under the sun.  My youngest son was planned cesarean and was not exposed as much maybe.   It is a scary thing to think that I could have given my son a disease like HCV and it may  have been prevented if that was the cause of him testing positive.  Heck, I could have found out 13 years earlier that I had it and started lifestyle changes like not drinking alcohol way back then.  Thank God I quit in 2005 anyway.  This whole thing with the testing just aggravates me to no end.  They say babyboomers should be tested.  Well my son is not a baby boomer and he tested Pos.   Everyone should be tested.  I liked the every six years if you are neg.  Since Im pos AB for life Im not sure what would be best   But I am not immune just because Im SVR.  I should cut and paste this somewhere on my computer so I can repost as necessary.  Im not even sure if all docs are testing pregnant women as i write this.  I dont think they do.  My current Gyn. does not.  I have gave her a what for about it.  Its a money thing.