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335297 tn?1210597884

Seek Advice - Post Treatment Neurologic Side Effects

Two weeks ago I completed 36 weeks of treatment (Peg + Copeg) for Genotype 1. The virus was undetectable at 12, 24, and 36 weeks. I am hopeful for svr at 6 months post treatment.

I am seeking advice from anyone who has experienced the post treatment side effects I currently am experiencing.

Throughout treatment I had many of the side effects discussed on the forum; brain fog, bursts of anger, headaches, eye strain, cough, etc. In the two weeks since the end of treatment, I have not seen any improvement in these side effects and there is one new side effect that I am experiencing that has me worried. A week ago while driving, my right foot went to sleep and I had difficulty getting it awake and since then I have had tingling in my feet and shakiness in my hands. I also began to feel unsteady on my feet every once in a while. I saw my doctor and he says it is a neurological problem cause by treatment and has prescribed Neurobion (a vitamin). The doctor is monitoring me and mentioned a brain scan if these symptoms persist.

I would be interested in hearing if anyone has experienced this neurological problem post treatment and how things turned out. I am interested in learning of ways I might help myself through diet or exercise. And of course, I am interested in seeing a light at the end of the tunnel.

Once again, thanks to all on the forum. You have been a life-saver all throughout treatment. I agree with what many on the forum have said, "This has been the challenge of my lifetime."

Best wishes...
26 Responses
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131817 tn?1209529311
Hmmmm.  No bugs or mold, just dried them out. So I can save them after a year of no care?  I have several small humadors that I neglected during tx and beyond. Think I can still save my expensive cigars?  

Knifes....great analogy about knifes.  Perhaps I will have to sent my present back and get the Laquiole. We go to France every year and I bet I can get them there much cheaper than here.  I will check out that sharpener. I got an electric one, but don't know it it is a good one.  Thanks

Now as for Golf,  I have never played and given my arm pain, I wouldn't mind borrowing one of those swords you have.  I was always a pitcher and captain of my softball team. Can't throw for s**t . I doubt I would be good at it. What else do you have?  I have lots ot tix for baseball, football and basketball I can trade?  Also we have cows eating the grass in the summer....
Helpful - 0
148987 tn?1287805926
Defined 'ruined'. If they dried out, you can bring 'em back. About the only thing that will 'ruin' a cigar is mold or cigar bugs.

Now about knives....one word: Laguiole

http://www.laguiole.com

No one knows knives better, imho, than the French and the Japanese. Henkels, german...good knives but remember...the guillotine and hari kari. You gotta have a sharp knife for those two activities. For Japanese knives....Fusionwood.

Just so happens I bought this cool knife sharpener...Chefs Choice Diamond Hone but I'm sure there are better.
Helpful - 0
131817 tn?1209529311
Yeah,  what do you think of Henykals (sp).  I like them if they are sharp,  but worry about sharping them, without ruining the blades. How do you do it?  

I am going to print out your cigar post.  Since tx,  I am lucky to put water on those foam things in the humador and ruined a lot of cigars. Que lastima'!  We had quite a collection.

Now swords could be dangerous in my state. Given the pain in my legs I may think about  chopping one or two limbs off.....so I think I will skip the swords! LOL
Helpful - 0
148987 tn?1287805926
" We get them in Jamaica legal when we go and DO not pack them in dirty laundry. "
---------------
No matter where you buy them, it's still illegal to bring them into the U.S. In fact I don't think you can bring tobacco products from anywhere into the U.S. I'm not sure though. I think they do allow two cartons for cigarettes or something like that. Can't recall. I used to get Davidoffs online from the Ukraine CHEAP but customs confiscated one shipment and that was that, they were on to me. I've been afraid to order online out of country since then. I have ordered Cubans online from Cigar One out of Switzerland on occasion and they've always made it through but this is just a few times and no more than 10 cigars at a time. You have to be really careful because there are soooo many forgeries out there. Like I say, for the price, I don't see the value added and I like a little bit stronger smoke.

Just as a matter of course, my daily cigar is an Upmann Petit Corona ( JFK's cigar ) because it doesn't take too long to smoke, and they aren't too expensive. $60 for a box of 20. But, I'm hooked on the Partagas Cifuentes and La Flor Dominicana Double Ligeros. On occasion I'll smoke a Partaga 160 or a Padron 1964 Anniversery Series, but at $20 a pop, not too often. There is a new, to the US, cigar out of Brazil by Dona Flor called the Selecao that has recieved high ratings. It hasn't hit the US market yet and the only place I've been able to find them at all is at a shop in New York.I notice they have ads looking for U.S. sales reps so I'm sure they'll be more widely available soon. But, I have a wide assortment. Cohibas, RYJ, Bolivars, La Gloria Cubanas, Rocky Patels, you name it. Some of the designer/botique cigars like Acid right down to bundles. Some I've had for nearly 20 years. Some of my best smokes are these Dominican Maduro bundles that were something like $35 for 20. Dirt cheap. Basically, a cigar has to be pretty nasty for me not to smoke it. Can't smoke flavored cigars other than the acid. Just too much for me.

" I am not good at keeping them moist in my cigar humidor."
------

That can be a pain. Art more than science. I have two big humidors that I swear, you open 'em up and they are 70/70 on the mark 90% of the time. A couple of smaller ones that are a pain to keep humidfied. In the summer, down here, heat becomes a problem and I move them into a room in front of a window AC, but then humidifying becomes a problem. Sometimes I put them in a big trunk with an Oasis electronic humidifier. In the winter, the opposite is true. I would think the bay area would be an easy place to keep a humidor stable. Fairly temperate consistant weather year around. You just have to experiment with different methods and change it to the conditions. I use several small humidifiers in my boxes, rather than one big one, and add and subtract them by need and condition. The La Madelaine tubed crystal humidifiers are perfect for this. Basically I don't sweat the humidity unless it falls below 60 or rises above 77 for extended periods. Temp I don't much care about the low end, but don't like to see 'em get above 77. The thing is, during the course of a day, it's going to rise and fall. I think people get too uptight about it all. Its just that if you get too much swing over and over for long periods, it tends to crack the wrappers, especially in the lighter shades. The maduros tend to be a bit more rugged which works for me since I like them better anyway.

So, yadda yadda...care to get into the critique of knives and swords ? I have some opinions...lol !!
Helpful - 0
131817 tn?1209529311
You sound like an energizer bunny running around in malls with a broken leg, shopping till' you drop, tearing out carpets....geez, I wish I had that energy!
Helpful - 0
131817 tn?1209529311
I think I would tell your friend to pack them in the "clean clothes" next time.  LOL Yuck, dirty laundry from a military guy...ewwwwh!   We get them in Jamacia legal when we go and DO not pack them in dirty laundry.  So what's your favorite cigar?  Yes, I love the #3's, but I am not good at keeping them moist in my cigar humador.  
Helpful - 0
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