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Avatar universal

Please help me

I know Hep C , it  will influence on over my body. I will try to stand that pain because i don't have much money. But i don't have any choice ,my mind is  stuck in the end of the road. I don't know How to solve. Because my close relatives are allways carefully when contact with me. I realize the diffrent in them. I am allways scare they will tell my sick with another one and they will be remote from me.I fell lonely in my house.
    In my company so. Frist only one person know and now I realize more person know my sick, i'm a teacher whether a mother have worried when they give their children for me to teach. I always scare they will know .I will be lose my job. And my love who love me if they know my sick. i not too old ,i only 35, i have a lot of intend  in the future.Please help me
     I don’t know how to continue. Sometimes I think  to the death..or  I want to go far far away from the place i live. I want to begin  my life in other place where nobody know me
Best Answer
683664 tn?1330966324
I am sad to hear of your isolation.  Fear of the virus can cause others to be unkind in words and behavior.  I have experienced this in my past as well.  Educating the people you care about may be one way to shift this situation.

Since you have access to a computer, do some research about Hep C and share that information with your relatives.  It will help them to know that Hep C is not easily transmitted and everyday contact will not cause them to be infected.  Print out some articles and underline the information that you most want them to understand.  I like Mary4now's idea, too, of taking relatives to the doctor with you.  Teaching your relatives about the virus will benefit them, and may also help you to feel more empowered.

You sound very lonely and depressed.  Please continue to post on the forum, find some friends here, and use this safe place to vent your feelings.  Just know that there are many of us who have, or did have, Hep C, and we are here to support you.

Lapis

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374652 tn?1494811435
I'm now telling ppl I am going through chemo therapy & that they found something in my liver. It seems chemo get s more support, but I dont know for sure because I"m not telling everyone the truth.
Only ppl that have been through it and thats that.
Helpful - 0
Avatar universal
please keep returning to this internet site and write, and write about your feelings.

I also select who knows about my hepatitis.  I am very cautious, and I live in Maryland, United States.  

I also live in a small community and am fearful of everybody knowing about my HepC.

I have always been a very private person.  I am fearful of starting treatment because of the side effects.

I am relieved I also found this web site.  It makes me feel better.     Bearwoman

Helpful - 0
Avatar universal
Yes...you have many friends here  and all  dealing with this  at one stage or another. Keep asking questions if you need to or just drop in to let us know how you are.

WILL
Helpful - 0
Avatar universal
thank you everyone,i feel mor happy when i talk with you.  i think i have depressed ,but i don't have any friends to share with me  I allways scare they will be away from me . So i don't tell any about my diseased. I used to tell my diseased to only one person who i love best but now more some people know me.I don't believed any person now. If i didn't tell, my life would be ok.Thank you I feel more happy because i get talking with you who have my disease like me. I have friends .those are you
Helpful - 0
374652 tn?1494811435
it is very difficult to feel so lonely. The area I live in is very conscious and people of like mind.  Is your doctor supportive?  Its easier to get a cold from someone and its easier to get the flu from someone than hep c,
You do not have to do anything special except not share tooth brush, fingernail clippers, but towels, dishes, glasses, things like that are safe because you are not in danger of blood to blood contamination.  I think its a shock to everyone and the more you learn the better off everyone will be.  
I think you need to sit your family down with the doctor.
carry on and dont worry.
Mary4now
Helpful - 0
Avatar universal
  Thank everyone.I really happy when tell my disease and confidence in you. i am happy when know Mary4now,she lives 41 years with virus Hep. I think you have good ,kindly friends and family . And me nobody. You know It difficult to change thinking of person. I live in Vietnam which people have very little knowlege of Hep.They scare the blood in my mouse, in my wounds or every month of me( i am a woman). I only move to a other place . I will have new friends, nobody know me I only wish so.
Helpful - 0
Avatar universal
Girlie, my heart goes out to you.  I told everyone as soon as I found out and was very scared too that they would shun me.  I was amazed at the support I recieved.  The more information about how the disease is spread, the better.  You're a teacher, teach.  Your gift will allow people to understand your disease and better help you through treatment.  Life is sooooo sweet and those who really love the person you are today will be there.  I'm sure that as a teacher, you are not putting any child in jeopardy (no transfer of blood).  Your boss should be told by you about your disease as soon as possible, but the parents don't necessarily need to be told.  You wouldn't tell them if you had cancer.  My thoughts and prayers are w/you.  
Helpful - 0
85962 tn?1329981090
Generally there is no pain, Mostly tired all the time, Impossible to infect others, Blood to Blood contact is the only exception, Biopsy results will tell you your next move?
Helpful - 0
Avatar universal
There really isn"t much to add to the folks that have already posted to you above other than to say.....I see from your post that you are still young...so the chances of you having any significant liver damage at this point are very low...so there is lots of hope.
You don"t mention what part of the world you are from...but I hope you do have some access to health care to at least get an assessment done on your present condition,that is the starting point right now

As far as the stigma attached to having contracted the disease...yes.unfortunatly it is still there to some degree but what you must focus on at this point is YOUR health and what you can do about it

In regards to your being a danger of transmitting the virus to others.... unless you are sharing IV apparatus with others or give blood  the chances are next to zero.

Please keep posting here to ask any questions you have ..there are many knowlegable people here to help you.

All the best
Helpful - 0
Avatar universal
I copied this from Hector's post on the other Hep C board.  You should read over there.

http://www.medhelp.org/forums/Hepatitis-C/show/75?camp=msc  ;

You will find a lot of good information that you can share with the people in your life.  There is no way to control what other people think, but I feel most people are better than we give them credit for.  Most people, even some doctors,  know very little about hep c, so they are afraid.  If you read old posts over there you will find many answers on where to look for help if you don't have insurance and where to look for help.  Ask questions when you don't understand.  

Mary made an excellent point.  A positive antibody test does not mean that you have hep c, the only way to know for sure is an HCV RNA by PCR.  Have you had that test?  Tell us more!!


How is hepatitis C virus spread

HCV is spread (transmitted) most efficiently through inadvertent exposure to infected blood.

    * The most common route of transmission is needles shared among users of illicit drugs.

    * Accidental needle-sticks in healthcare workers also have transmitted the virus.

    * The average risk of getting HCV from a stick with a contaminated needle is 1.8% (range 0% to 10%).

    * Prior to 1992, some people acquired the infection from transfusions of blood or blood products. Since 1992, all blood products are screened for HCV, and cases of HCV due to blood transfusion now are extremely rare.

    * HCV also can be passed from mother to unborn child. Approximately 4 of every 100 infants born to HCV-infected mothers become infected with the virus.

    * A small number of cases are transmitted through sexual intercourse. The risk of transmission of HCV from an infected individual to a non-infected spouse or partner without the use of condoms over a lifetime has been estimated to be 1% to 4%

    * Finally, there have been some outbreaks of HCV when instruments or sharp tool have been re-used without appropriate cleaning between patients.
Helpful - 0
374652 tn?1494811435
Where do you live? You have quite an accent even in type.
Please let us know how you determined you have hcv and have you had the tests to determine your level of damage?  Some people do not even treat and do not have much damage, and the disease outlives them.  But that is not to say you should not pursue this and find out what you can.
I understand a little how you feel, I felt like Typhoid Mary for a while, but think about this there are many people out there with this virus who do not know they have it..... at least you can take precautions. Remember this is a blood to blood contagen and that is pretty hard to do, with casual contact.  Many of the members here are married and their partners have not contracted the virus from them
If you are a teacher you may have to educate your "friends" and yourself.
This may also show you who your real friends are.  If you lose your job based on this disease you do have a lawsuit, so take notes as you go along.
I have had this virus for close to 40 years, so do not think of  death right now, just find out what you can about your situation.
the genotype
the damage to the liver (biopsy)  If you are a teacher dont you have insurance at least for these tests?

Above all DO NOT WORRY, it does no good, use that courage to educate yourself, have faith
bring your family to your doctor (hepatologist) and have him/her explain this disease to your loved ones.  

Arm yourself with education and faith,,, please do not take on their problems of ignorance.
Mary
Helpful - 0
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