scare and need someone to hear

[blondie51]

Hi..I have been reading  stuff in here fro  two weeks  now   this site  has been a  godsend for  me.My husband  has   just resently  been diagnosed  with hipc  and cirrohsis  genotype1.He had swollen feet and legs his stomace was  quit large  but is now  going  down.The  doc has him  on diaritics they sem to be helping.He finley has an  appoinment  with the liver clinic in  two  weeks.this   come as  qit  a  surprise to us  we had  no idea he has  this hipc   till he got hurt at work  and had to go  for blood test  then wamo got hit all at once about  this.I have no idea  what to exspect  i just  know i want t be there for him  and   know what w will be going thru togeather.We have been married for 37 years so i  plan on being here and helping  him as best as i can.I have gone thru alot of emotions myself i waswondering if this was  normal  by the way i have been  tested twice i don't have it.i  don't want to  burden  my  family   and friens cause i am sure they are sick  of hearing  from me  and   they are closeing their   eye to this.Thats ok   some people have  different ways of   dealing   with things i do understand  that.ty  for  listening     take care   bfn

[sunshine007]

I'm sorry you and your husband will be going thru this.  It will be a long hard road but one that you can manage with the right combination of determination and medical support.  The genotype your husband has is a bugger, meaning if you guys decide to treat it will require 48 weeks of combo therapy including weekly shots and daily pill medication.  There are a lot of side effects from the medication but they can, to some degree, be managed.  The first thing your husband will need is a liver biopsy which isn't as scary as it sounds.  Mine was quite easy and the recovery took only that afternoon.  That will asses his level of liver damage so far.  That is the number one thing he must find out.  From there his doctor will give him the option of treating or not.  Some people do as it can cure the disease and others choose to adopt a wait and see approach.  You can search the past archives of this forum for a lot of great information.  Keep us updated on how things are progressing.  You'll get a lot of comfort and support here.  

[orphanedhawk]

Hi,
   I have hep with cirrhosis though I'm geno. 2. I had no idea until my abdomen became bloated from ascites. The diuretics helped me. Your husband needs to change his diet. He needs to cut out salt, which is not easy. I read labels and am shocked at how much salt is in everything.
  I hope you have a good liver clinic.Make a list of the questions you want to ask your liver doctor. Educate yourself as best you can, about hepc. You can always come here to complain to us. We are experiencing the same things. This forum has been a great help to me.   It doesn't matter how your husband got the virus or the fact that you don't have it. What you need to do is go from here.  My husband is so supportive but I know it isn't easy for him.
           I hear you!  Good luck.

[snowbyrd]

My hubby has been fantastic for me during my treatment. It sounds like your husband will have your support, but remember you will be doing this together and you need to come on here and post and talk to people and let out your feelings. The people here are amazing and you will learn more about Hep c here than you will from your Doctor. The people here care and always have time to support each other. Please take care and stay close by. It is OK to be scared and worried, but knowledge is power. Learn as much as you can.

[Pdilly]

Hello there.  Sorry about your husband but it is understandable to be shocked and worried.  We all have been there at least one point on this journey.  Get a good doctor.  Keep all the labs that you get.  I keep mine in a folder.  Also I keep any articles that I find informative.  Anyway do come back we can give you the support that you are going to need.   This is one of the best sites around and I think you have already figured that one out.

[snowbyrd]

sorry i sent your post to sunshine.......major pain and brain fog

[blondie51]

Ty everyone i read   all  your comments  with  tears in  my  eyes .It's  good  to  be able to talk  to  people  that have been  through   this   juorney.I see it  is     going to be  along  hard  one  but i am   prepared to  do it  and to  help my  hisband with.It's  realy  nice  to know  theres  people here that  are willing to   share their  emotions ,pain and happiness  with   others.I  am learning  from this  site  what questions to ask  the  doctor, if you  don't know they don't offer i've learned that much.   TY  again  for being here  bfn    

[wyntre9]

It's really hard hearing you or a loved one has been diagnosed, but probably the worst part is when you don't understand anything about the disease.

Luckily for you, since you found forum, that problem should be at least partially solved.

There are a LOT of really BRILLIANT people here.  :)

Your husband is lucky to have you in his corner.  Feel free to stop in and ask questions or just plain vent whenever ya want.

wyntre

[Htownwife]

Hi Blondie,
I also have a husband with HepC,(married 26 years) and he has Genotype1 like yours does. He's been treating now for 45 weeks. It's not easy at all, but you can do it. He's going to need a lot of support and understanding from you. Come here with ALL questions...the folks here are great at helping you understand, and also for calming your fears.
This site has been a HUGE blessing for me, and you realize you're not alone in this battle!!
Take care!!

[wyntre9]

sorry all if i go off on a slight tangent . . .

HT, just wanted to let you know I stopped by the school today and collected half of my stuff.

As i told you before, I don't know how I'm gonna manage it - (did put the house up for sale today) - but, yup, i'm through.

As SFG said; (about another life situation)

"Stick me with a fork.  I'm done."

your hubby's only got 3 MORE Weeks!  YAY!

How's spring break treating you?

wyntre

[Htownwife]

Hi there!

I'm glad you took the plunge!! Teaching is stressful, and it sounds like where you were was DOUBLE or TRIPLE the stress anyone could handle!

I'm sure something will come along...I understand there are a lot of places that hire former teachers!!
Do you have any idea what you want to do??? Since we're on the subject? LOL!!
I'll try to think of something for you if you want me to!
I'm great at planning everyone's life whether they like it or not!!:)

Yeah, only THREE more weeks!!! YAHOOOOO!! It's hard to remember LBHC,(life before HepC) but I'm willing to try to remember!!!!

Spring Break is over, it was great!!, but now have a 3 day weekend with Easter break here. Two state tests down (math and reading) and one to go (science)
Then......FREEDOM!!

I posted the cockatoo link on your other thread!

Take care, and keep me posted on life happenings!!!  

[wyntre9]

i just read about geronimo!

Yup!  I'd do the same thing.  What a great story.

(don't know why the reporter mentioned the $2,000 price tag - to harvey, that's totally irrelevant!  guess there had to be some financial justification in someone's eyes to call out the coast guard, though)  *LOL*

wyn

[pitter]

Hi everyone,
I am new here..found hcv in blood test for insurance..retested positive,,going to gastro Doc.on tues coming. liver enzymes aren't very high at all..viral load was 3600000...
I feel fine..except for some joint pain that we thought for about 8 yrs was rheumetoid arth..(it is in my family, but did not show in my blood)
weel I am having a problem believing that I have such a thing as hep c...I have read all about it and I understand it..but I don't believe it.. I guess I will find out more at the doc appt . what do you think is in store for me?
hope you all are well tonight,
Pitter

[pitter]

Hi  Blondie ,, I accidentally put my post in your box..sorry...best of all to you and your husband
Pitter

[GoofyDad]

So to hear about you woes. Time to start eating healthy and laying off the sauce if your a drinker. You didn't mention genotype - you want to know that for sure. Next step will of course be the biopsy. That and the genotype will largely help *you* decide how to procede. There are options, and I encourage you to take the helm and chart your course.