In 2003 developed SSS (age 50) and syncope....required permanent pacemaker. Did fine until October 2007 when I developed S.O.B., anasarca, ascites......multiple tests etc. In Feb. 2008 had a cath....diagnosed with idiopathic restrictive cardiomyopathy. Early April admitted to local hospital in critical condition , bilat huge pleural effusions required chest tubes ....was hospitalized 5 wks , 2 arrests, then transferred to tertiary care center in Miami....was there 5 wks . Had 2 other cardiac caths. Restrictive cardiomyopathy of any type has been ruled out. Diagnosed with severe tricuspid regurg....pacer wire is pulling on valve but not certain that is the cause. RV is enlarged and I have mild pulmonary hypertension (40/20). Was discharged to get recondtioned, then return for tricuspid surgery. I require oxygen now, pretty much continuous at 1-2 liters.Now the Drs are saying they are not sure if doing the surgery on the valve might make my breathing worse. I had a PFT....mild restrictive, mild obstructive, severely abnormal DLCO. I was a smoker for many years before getting sick...but I was working full time and not SOB until all this happened. I don't understand why the tricuspid surgery would make my condition worse?? I'm a nurse but I don't get it. THanks