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456995 tn?1206589507

Too Young Too Die, But Nothing They Can Do...

Hello Everyone! My mom has Kidney failure and Hepatitis. She was born with one kidney, which failed, had a transplant in 1985 (I was 5 years old).  During that time, they didn't test blood the way they do now, and she ended up being infected with Heptatitis.  So fast forward twenty some odd years - she's done well, and has far surpassed what the doctors thought should would.  Sure, she's been in and out of hospitals, shes been sick and has had to stay away from people when they are sick.  She's had blood transfusions and shots, but she's always managed, she's always pulled through, and has always done alright.  Well, her last check up they finally said she doesn't have a choice, she has to go back on the transplant list.  She's been in chronic rejection for years, but her numbers were never that bad to warrant her going on the list.   I'm sad, and scared, and angry, and ...  I could go on and on.  I know she is too, but she's prepared I guess.   She says she doesn't know if she wants to go through it all again.  Also, she's a nurse herself (so she has the medical knowlege).   Also, with the Hepatitis, even if she had another transplant the liver would mess things up.  The type of Heptatitis she has responds very well to something called Interfuron, BUT... she is not a candidate because of the kidney stuff.  Not to mention, blood wise - she is the universal donor (and can only receive from specific types), so that really makes things difficult.   My mom just turned 45 years old last weekend.  She is too young to die, and she's never truly lived.  I had a lot of problems during my teenage years, up until a few years ago, so that put alot of stress on her, took away from our relationship.  She hasn't done half the things she has wanted to, for one reason or another..  I just hate the whole situation, I mean, there has to be something that can be done (apparently there isn't, though).  She doesn't know what she is going to do.  She told me she would rather die from kidney failure than liver failure because its less painful.  That was a heartbreaking thing for me to hear her say.  I just feel so helpless ...
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Avatar universal
Hello Jessica

Check out this post !

http://www.medhelp.org/posts/show/465084

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456995 tn?1206589507
Thanks Rob !
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Avatar universal
Jess,

I don't have medical advice for you, but after coming across your posts, I just wanted to write - hang in there. You know life is tough, but you also know tough is temporary. It appears you have put yourelf in a good position. Stay your course and try to weather these tough times as best you can. Eventually, all tough times become memories. Where you are and how you are when you think back on on these tough times is attributable to how you handle yourself, during these tough times. Keep strong and may all prayers and questions be answered.

rob
Helpful - 0
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