Aa
Aa
A
A
A
Close
Avatar universal

11-year old daughter

My daughter has been intermittently sick since early October. She is tired, pale, and has abdominal pain (that turns out to be a swollen liver and spleen) that lasts approximately 2 days, and then goes away for 1-3 weeks. In November, her pediatrician diagnosed her with mono. However, I am skeptical, given there is no guarantee she contracted EBV this year or that it is responsible for these symptoms, and the liver pain keeps coming back instead of getting better.

She has had complete blood counts and liver and kidney enzyme tests 4 times, and all tests have been normal. Right before Christmas she had a sudden headache with visual disturbances. I took her to the ER. She had a CAT scan that was normal, and was diagnosed with a migraine. Two days ago her liver pain came back, (though she did not tell me) and she has also has headaches, though not as bad as the migraine.

I am very concerned, but the last time I took her to her pediatrician's office a nurse examined her and the pediatrician dismissed my concerns, saying, "she has mono".
7 Responses
Sort by: Helpful Oldest Newest
1081992 tn?1389903637
COMMUNITY LEADER
hi, that means her spleen is on the high end of normal size as it enlarges to fight the infection. I wouldn't be surprised if her latest blood test shows elevated WBCs.

Probably the doctors are correct in this case and it's something they see all the time. Transmission of EBV can occur without anyone knowing and in fact most Western humans probably have it in their system.

Helpful - 0
Avatar universal
My 12 yr old has been diagnosised with an enlarged spleen with in normal range ( what does that even mean )  Her blood work is normal  kidneys and all  We went for more blood work to rule out mono  and waiting on results from Sat it is now Mon I had to call doctor she has swollen throat and hard to swallow  she has been getting light headed  and her belly feels nervous or hurts it is not a sharp pain  but I am not sure the doctors office is listening to me all they want to say is mono  and she has not been any where near  someone or anything where the virus could of been picked up I have researched  and I am at a loss   Her sleen was not noticed by exam a ultra sound found it when the doctor ordered a abdomen and pelvic ultrs sound done  I feel like I am getting run around
Helpful - 0
Avatar universal
I guess this is the wrong forum for my daughter's problem, since her liver and spleen have turned out to be ok, so I am no longer wondering about leukemia or lymphoma.

The sonogram of her abdomen was negative. Her spleen and liver are not swollen, and yet she is still having pain in her upper abdomen that is severe enough to keep her awake at night and to require a heating pad. She also is tired and pale when the pain is bad.

The doctor has referred her to a pediatric gastroenterologist.
Helpful - 0
Avatar universal
She is still having headaches, though not as severe as the one she was seen in the ER for on Dec. 23. She has had no more visual disturbances.

She had a positive lab test for EBV in November. This is why her pediatrician does not want to see her, he says the symptoms are viral and may last for six months. I read the lab reports, though I don't recall exactly what the numbers from the EBV test were now, however, the pediatrician said they were "very high".

Helpful - 0
Avatar universal
Hi.
Is she already taking any medicine for her symptoms?
Is there progression of headache or visual disturbance?  EBV can have central nervous system complications, and if this is indeed an EBV infection, this warrants treatment.

If her liver or spleen is still enlarged, the ultrasound can pick it up.
Please post your updates.
Helpful - 0
Avatar universal
Today I took her to a different physician because her pediatrician did not want to see her again. He ordered an ultrasound of her abdomen. These are the only lab tests that have been done.

She still has pain and tenderness in her right side, but neither her liver or spleen feel enlarged to the doctor.

The pain is bad enough to keep her awake at night, and she also gets very tired. I just don't know what it could be, but I guess if anything is still enlarged it will show up on the ultrasound?
Helpful - 0
Avatar universal
Hi.
Infectious mononucleosis caused by EBV typically presents with fever, malaise, muscle pains, lymphadenopathy and pharyngitis (first 2 weeks of illness), enlarged spleen (second or third week of illness).
What other laboratory examinations were done on your daughter?
You can always bring your daughter to another physician especially if you are not convinced with her current diagnosis.
Helpful - 0
Have an Answer?

You are reading content posted in the Leukemia and Lymphoma Community

Top Leukemia & Lymphoma Answerers
1081992 tn?1389903637
PA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
An interview with the co-discoverer of one of the biggest breakthroughs in cancer research
From causes to treatment options, get answers to your questions about CML, a type of blood cancer
New drug options on the horizon may make CML, a type of blood cancer, one of the few success stories in cancer treatment
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.