There was another part to the above post, but I included a link to another forum and didn't realize that wasn't allowed. It had info about how pred is known to mask lymphoma symptoms, including temporarily shrinking nodes, which can cause missed and delayed diagnosis.
I can now definitely feel the lump returning. Not large enough yet to have a doctor find or think is an issue, but I'm guessing it's going to end up back to where it was going on how I can now easily find it and wasn't able to just days ago. Have been off the pred for not quite a week.
I hate going down this rabbit hole of health anxiety.
I've been having abdominal aches and chest tightness/heaviness for a couple weeks now. The abdominal aches come and ago after a few days, but the chest issue remained. One night it got particularly worrisome as while I could breath, my passage seemed quite restricted. If it got any worse, I'd have been going to the ER. So while I was out the next day, although it had gotten somewhat better by morning, I stopped into an urgent care. They listened to it and said I had an upper respiratory infection and to take prednisone. So I am. Pretty quickly the lung issues improve and the abdominal ache starts back a little but then goes away quicker than usual. Now, I go to feel for the lymp node in my neck. The one that has been enlarged and palpable for 2 years. It's not there! Great news, right? Nope. The internet says no.
So I start researching this and get flooded with info about how pred can shrink lymphoma nodes and mess up tests for diagnosis. So there goes my plan to go get this checked out again anytime soon. What I couldn't find was how long I need to wait. I'll be on it for 10 days. This is just after two full days of dosage and the lump can no longer be found.
Of course, I find the perfect story to send me into a panic. A guy who had chest and abdominal pains and was put on prednisone. They cleared up right away. As well as other issues like some bone aches, which I have been mildly experiencing. Then 3 years later, it was later discovered these pains were from a large mass pressing against organs (what I fear my sensation are from) and the pred had been able to relieve the symptoms.
So while I'm starting to feel physically better and I no longer have a palpable node in my neck, I'm just as concerned, if not more, that I have lymphoma. And certainly more convinced that if I do, diagnosis will not be coming soon enough. It was impossible enough before. Now to have no lump. There's no chance I'll be taken seriously.
Everyone wants to tell me it's anxiety. The abdominal pains, I could buy being anxiety. But not the chest pains. There's something there. Some kind of infection or obstruction. Maybe it's just an infection and the pred will clear it up and that's it. Or maybe it's cancer induced and the pred will just mask the symptoms for a while. I guess now I just wait to see if symptoms start to return at some point. Including the node. If it comes back, I can't imagine that's good. My research was far from exhaustive, but I found nothing to indicate that pred would shrink reactive nodes that would later come back.
So it looks like getting the lung issue looked at might'e just really complicated things when it comes to my ultimate worry.
Several more 3d measurements, they vary all over and some could presumably be regarded as rounded:
http://www.medhelp.org/user_photos/show/758300?personal_page_id=928161
It should be reassuring that an onc has pronounced this as likely not-cancer and doesn't want resectional biopsy:
http://www.medhelp.org/posts/Leukemia--Lymphoma-/panic-mode-RE--lymph-nodes-in-neck-no-fatty-Hela/show/2962500
I also wonder if a high frequency 2d sono has better resolution than a 3d sono, or not.
I must've overlooked the ovoid part when I first read it and just focussed on the size. Yes, it was frustrating researching this as like you said, I could find nothing covering the specific issue of 3D measurements indicating the node is oval as well as round. I did see some others who gave 3 measurements for their node, but nothing was ever said about the significance. Also, most of (if not all) of those examples with had two similar sized measurements, had the shortest one in the middle rather than 3rd as on mine. But I'm not sure if they were ordered in the same standard or not. All of those threads ended before any conclusion was given, so I don't know how they turned out.
I will make an effort to come back with any updates. But if it turns out bad, I could see not making my way back here. I always wonder what happened in all those threads with no conclusion. Many end with saying they are going to get their results. I figure most of the time it came back fine and so they went on with their life and never made their way back to give an update. But then I wonder how many may've gotten bad news and giving an update just wasn't a priority. One of the threads had it looking good for the person and then at the biopsy, the surgeon made indications it didn't look good. But then no update on the results.
My plan is to see an ENT to discuss this and get another blood test. I will see about getting a 2nd opinion on the ultrasound, but am not sure how to go about that. The clinic where I had it done (but was not read there) only gave me the paper I quoted when I requested the results. So I'll have to look into who actually has the imaging. I think I'll wait and see what the ENT says, though. Maybe they will want to do an update ultrasound to see if it grew.
After doing research and reading other people's ultrasound readings, mine seems more vague than all the ones I've seen online. Most readings I found were similar in length and structure, but included more specifies. Mine seems to not even want to confirm it's a lymph node. However, the woman doing the ultrasound said "Oh yeah, I can see it. A little lymph node" as she was asking me to point it out. Then the doctor giving me the results said it was a lymph node. I realize no one can really tell me anything for certain without a biopsy, but I wish I could've been told the true details of my results at the follow up. I would've liked to discuss the parts I have concern with. He didn't actually show me the results, he opened the folder and looked at them and then told me the lymph node is probably benign and that my blood results were all normal. However, after now requesting these results, I find out the numbers weren't all normal and nowhere in the ultrasound reading is it mentioned that that there was any opinion on whether it appeared benign or not. It doesn't even commit to being a lymph node. Had I known the actual results, I would've made it a point to continue investigating it by making an appointment with an ENT at that time.
This process has been very frustrating and reading of others who had similar experiences of being told "It's probably nothing" and then later diagnosed with cancer is what has me worried. Most of the stories I read have included larger size nodes and/or multiple palpable nodes and/or prominent symptoms. Then I start to feel a bit better and think it must not be anything after this much time has passed and no noticeable increase in size or obvious symptoms (I never have a fever when I check and noticeable sweating at night only occurs when I use a heavy comforter on my foam mattress). Then I read a couple stories of people who had tiny lumps in their neck for 2 years with no other symptoms and were told it was probably nothing until later being diagnosed with cancer that had spread. Now my biggest fear is not just that it is cancer, but that it has been let go this long.
I have never heard about the allergy and anxiety connection. I will read up on it. Both are pretty severe for me, so I wouldn't be surprised if it's somehow connected.
Thanks again for replying to my posts.
Here's the full text of the ultrasound reading I was given.
There is a subcutaneous ovoid density beneath the chin on the right side of the neck. This measures 1cm by 0.9 by 0.4cm. It is hypoechoic with hyperechoic changes in the mid part of the nodule. This may represent a lymph node.
IMPRESSION:
1. This sonogram confirms a subcutaneous nodule of the lateral right neck.
2. This has the appearance of a lymph node.
3. May consider a follow up study if needed.
Thanks for the reply, Ken. Its size as far as I can tell hasn't changed in nearly 2 years, but since I can't feel the whole thing, I guess I can't be sure. I'll see about getting an appointment with an ENT to look at it and discuss the test results. The roundness and low numbers on my blood test are what concern me. Also that it feels like it's probably attached to tissue.
I have some mild symptoms- most come and go, but nothing which couldn't easily be blamed on my allergy, depression and anxiety issues. The doctor didn't seem concerned, but he's someone I've only been to once and he was rushed that day and now that I requested my results, I find out that my numbers weren't all normal. He said I could have an ENT look at it if I like. I had some other things in life come up and getting to an ENT didn't happen. That was about 5 months ago.
Sorry, I see that you say it's the back hairline. Anyway, that introduces the concept that some nodes (also parotids) are naturally more rounded. Most everything has to do with "tending".
Most sonographic measurements are given as 2D. IIRC, the order of measurements in 3D scanning is front to back, then side to side, then head to foot directions. But then for neck sono, the nodes are near the surface and conventions might be different, so the 0.4 cm is probably the thickness/depth of the node. If that is correct and your node thereby is round, then you'd be most interested in any increase in size.
Btw, most docs aren't concerned when a lab value is only slightly out of range. That said, to me the monocytes seem more than slightly low - but occasionally having low monocytes is not uncommon. You'd be concerned if it was a long term pattern.
Is it a submandibular node? They tend to roundness normally.
Btw, I'm 37. Also, my doctor did a blood test and when I had the follow up, he was looking at my results and saying to himself as he read each of the first few categories "normal, normal, normal, normal. Everything's normal."
However, I just recently requested the results for myself and there are 3 listed as abnormal:
LYM# 1.1 (1.2 - 3.2)
MON% 2.9 (4 -10)
MON# 0.1 (0.3 - 0.8)