I forgot that I have not mentioned new symptoms yet to my doctor. I was never asked about them but have noticed that some lymphoma symptoms are the sweating and fire-body-thing and coldness.
They never asked these things...
Hi.
You may be having symptoms of lymphoma. However, there are other disease entities that can present with such symptoms. An example would be an endocrine problem particularly a thyroid problem, though this will not present with lymphadenopathy.
The diagnosis of lymphoma can be made by biopsy.
It would be best to go back to your doctor for further evaluation and management. A lymph node biopsy may be needed in order to have a more definite diagnosis.
Do post your updates.
Good luck.
This is probably a silly question, but you didnt mention it so Ill ask... you or your parents did inform the doctor about your family history of lymphoma right? It seems illogical to me that the doctor decided to cancel the biopsy with a family history suggestive of this possiblity.
Yes we did inform them. Some of them just ignored while my original dermatologist was very concerned.
We thought it could have been a thyroid problem but according to the doctor the sonogram showed a normal sized and functioning thyroid. He did notice that the lymph node was not majorly swollen but it was large enough to be considered enlarged. It never hit me that I am the person in the car who wants the heat turned up because I am always cold, but then I will sitting on the computer and feel like I am on fire and my whole body tingles. I get this prickly feeling in my legs, hands, and other extremities of my body..but I am not sure what all is related to this :/
Well I just felt my side and it appears I have more of these lumps. My doctor thinks they are limpomas and said that lymph nodes in that region are deep and it is very unusal and very very rare to fell them unless they are on the rib cage, Mine are slightly below. I have discovered my left side feels quite lumpy.
Hi.
A CT scan of the chest and abdomen may be done in order to document presence or absence of lymph nodes within the chest and abdominal cavities.
Lipomas are benign tumors and are superficial to the skin.
Since you have a progressive enlargement of lymph nodes, as well as increase in number, it would be best to have a biopsy done.
I would also suggest to have a second opinion from another doctor for further evaluation.
Just went to the doctor today. She thinks it would be best to go ahead with the CAT scan of the neck and to go back to my surgeon and have a couple removed for testing and to make sure they are lipomas. She said it is very very rare for lymph nodes to be in that area but it can happen. She seemed non-concerned but she also wants to make sure.
She also suggested waiting and seeing as my acne is cleared up to see if there is a change in the lymph nodes. She said sometimes acne can drain into them. But my dermatologist said that is a very very unusual thing to happen with acne. He said to get it checked out again.
GRRR haha
Justin
Hi.
I agree with the decision to have a CT scan and biopsy done.
That will give a more definite diagnosis of what you are experiencing.
Post your updates.
Good luck.
I will post them as they come. I have a feeling the surgeon won't get me into his office for a while as it seems they are the most busy these days.
I also agree with the Cat scan. My ORL originally said it is possibly they are growing into the neck and all we feel is what is poking out so he wanted to get exact measurements of the whole lymph nodules.
My CT scan is tomorrow afternoon at 3pm eastern time!!!
Hi.
Let's wait for the result of your Ct scan and biopsy.
Good luck.
Got the CT scan today. He was able to find most of the lymph nodes. He said they were "border-line normal."
The biggest was 0.99cm and the smallest was 0.76cm
These are fairly close to being considered abnormal so he wants to get another CT in 6 months to have something to compare off of.
Surgeon will be next week on thursday at 2pm eastern. The radiologist recommended possibly have an groin lymph node taken out since it is easily accessed and not as risk since it is not in the neck or near a facial nerve.
Hi.
Please do give updates, especially the biopsy result.
Good luck.
It may be a while until we get any updates but I will post asap on them.
Some of them kinda hurt if I touch them on accident now...ugh
Went to the surgeon. He again wants to wait. I now have three lumps in my right side and a couple in my left.
Mom is calling around for a second opinion because she is tired of waiting and not getting a defininite answer to what is going on.
Hi.
I agree with a second opinion from another doctor.
Good luck.
I now have a lump in my armpit. It does not feel like a lymph node but there is a lump.
Hi.
From my understanding, you went for a second opinion. How was it? What did he suggest?
I still believe you need a biopsy done since you you have progressive enlargement of the lymph nodes, as well as appearance of new lymph nodes.
I will be getting a second opinion this upcoming thursday from another surgeon.
We are not sure if the ones in my side are lymph nodes but we know the ones in my groin and neck are.
What have been in my sides are what my doctor keeps calling "Lipomas" or fatty tumors. I just don't understand why I have like 6 of these limpomas in my side and then like 4 on the other side. I also have more groin lymph nodes than I previously had and they go more into my thigh and can be sore if I press hard enough.
There is a lump in my armpit now...it feels like the ones in my side...not like a lymph node...
This is scaring me.
Justin
Hi.
You are right. Lipomas are benign tumors of fatty origin and is located superficial to the skin. These are different from the lymph nodes in your neck and groin, as your CT scan confirmed.
Please post your updates.
For the meantime, try to relax and not to worry too much.
Sir
are you serious? I mean why there is such a delay? go to ER right away, make up something like you cannot breathe and you have bump growing all over...please trust me on this, this will be the most quickest way to get results sooner.
good luck
JustinH1991 has similar problem to my oldest daughter age 25 who started out a year and half ago with an acute onset of headache and problems with gate on right side and high fevers. She was seen by two neurologist and alot of test but no diagnosis. She has developed on going fevers, severe headaches that no medication helps, very tired, swollen hands and feet. From time to time she experiences severe vomiting. Battles with passing out spells suddenly. In August 2007 she had a hard lymp node appear on left side of neck along with smaller ones throughout her body. She was treated with antibotics several times no help. The lymph node was removed in Oct and surgeron said appeared abnormal with sponge hard pale gray appearance. We were not told of hyperplasia cells found until we requested information for another opinion. She has seen a infectious disease physician and last o onocolgist. She was told no autoimmune diseases found by infectious disease doctor. Oncologist did a bone marrow biopsy and found no cancer cells however low iron. CT prior showed various lymph nodes throughout with on suspious lymph node near rt ovary measured 1.5 cm. Blood work always show high hemglobin for a women between 15 and 18 which makes no since with low iron. She continues to have same symptoms no relief and now lymph node back in area removed. No one seems to have the answer or care. What should we do? We are paying an arm and a leg with no answers. We just want her better. Please help!