Aa
I have been having symptoms for Lymphoma.
I have been feeling different for the past 4 or 5 months. It started with the feeling of fatigue and constent cold. Then i discoverd a lining of swollen lymph nodes under my jaw line (left side), above my adams apple, groin, a large lump above my left collar bone and my lower left trachea which I feel is crushing my windpipe and giving me inability to catch a breath of air, the chronic shortness of breath is a major symptom. I went to the doctor and they took blood samples that came back clear. My symptoms got worse ( shortness of breath, chest pain, and growing lymph nodes) she performs a ultra sound and the result came back " remarkable with no enlarge lymph nodes" which made me very aggitated because they are obviously sticking out of my neck, anyone with the ability to feel will understand my lymph nodes are not normal what so ever. I have had brittle asthma my entire life and spent my first 2 years in the hospital. I know my asthma symptoms and this is not asthma, and i am certain. These people gave me 6 nebulizer treatment and there was no change in my shortness of breath (obviously) because if that would have helped i would have never went to the damn hospital and waste my time and money in the first place. Anyway after the 6 treatments nothing change and they still managed to send me home with asthma difficulties. I said whatever and made an appointment the next day. They said the same thing like i have asthma and anxiety but i choose to go in for a ct scan. Everything came back normal. The sympoms are only getting worse, should i do something else about this? Please help , thank you all so much for your time, and responses will be appreciated!
This is wayyy old, but I wondered if you found out anything. As far as the report goes, well, I have a problem with certain radiologists around here from experience!!
Many things were missed on my reports making it look like I was making stuff up before. Totally different problem. It was my lower back and my neck area! I had an MRI where a male radiologist said on the report that all was good. I knew darn well it wasn't! 2 weeks later I had another. A female read it and she put all that was wrong including a broken disc. 4 weeks later another, a male once again put nothing was wrong! Another month later,the female put all kinds of things in there.
It literally was a pattern. I had surgery and had the disc fragment cleaned up and disc repair, etc. Anyway,later more neck and lower back issues. It was back to the same problem with the radiologists. It's like the men just had too many to do or they looked at only one of the hundreds of images and said nothing was wrong. The females seemed to take more time and noted the problems. I am not a feminist. I just noticed a patternaround here with radiologists and readings!
So, I'd request another reading of it from someone else or get another done, in the future if you have something and you are sure you do and they are saying it is normal and clear, or whatever.
That is just my experience. I have a MRI coming up next week. Trust me, I'm very worried about who is going to read it. I can request a certain radiologist, but the lady that is always right is no longer working at the place that reads them. There is another lady there, but she missed a tumor I had one time. However, she might be better than the men there who tend to not look at my images.
Anyway, again, I know this is very old and different situations/ areas, but I still think the radiologist makes all the difference.
Many things were missed on my reports making it look like I was making stuff up before. Totally different problem. It was my lower back and my neck area! I had an MRI where a male radiologist said on the report that all was good. I knew darn well it wasn't! 2 weeks later I had another. A female read it and she put all that was wrong including a broken disc. 4 weeks later another, a male once again put nothing was wrong! Another month later,the female put all kinds of things in there.
It literally was a pattern. I had surgery and had the disc fragment cleaned up and disc repair, etc. Anyway,later more neck and lower back issues. It was back to the same problem with the radiologists. It's like the men just had too many to do or they looked at only one of the hundreds of images and said nothing was wrong. The females seemed to take more time and noted the problems. I am not a feminist. I just noticed a patternaround here with radiologists and readings!
So, I'd request another reading of it from someone else or get another done, in the future if you have something and you are sure you do and they are saying it is normal and clear, or whatever.
That is just my experience. I have a MRI coming up next week. Trust me, I'm very worried about who is going to read it. I can request a certain radiologist, but the lady that is always right is no longer working at the place that reads them. There is another lady there, but she missed a tumor I had one time. However, she might be better than the men there who tend to not look at my images.
Anyway, again, I know this is very old and different situations/ areas, but I still think the radiologist makes all the difference.
COMMUNITY LEADER
The big hurdle is the ultrasound report saying that nothing is there. So you need to sit with a doc (like a Family Practioner) with that report in hand while they can see and feel that something really is there. Even if the bumps were just pure water (cysts), the ultrasound should see that.
What happened when you've had a doc in the ER or anywhere feel the areas? What did they say?
What happened when you've had a doc in the ER or anywhere feel the areas? What did they say?
COMMUNITY LEADER
The other main thing is that you are sure that you'd know the difference between 1) constriction in the lungs resulting from asthma, versus 2) this new symptom which is a single obstruction in the trachea while the lungs are okay. Right?
Can you move the bump over the trachea? Does that change breathing ability at all?
Can you move the bump over the trachea? Does that change breathing ability at all?
COMMUNITY LEADER
Hi, I certainly think you shouldn't just accept what you think is a wrong diagnosis - especially as you are getting worse.
Can you post the complete ultrasound report? Especially what comes before the word 'remarkable'. That situation s really odd, saying that you have nothing there while you have easily seen and felt bumps.
What you describe sounds like "generalized lymphadenopathy" because they are all over. But at this point we can't be sure that the bumps are lymph nodes. How big are they in general? How big is the biggest one? Did they pop up mostly overnight or grow gradually? Are they tender or even painful?
Btw, an ER is not a great place for diagnosing mystery conditions. They're more geared for handling easily diagnosed but very dangerous conditions.
Can you post the complete ultrasound report? Especially what comes before the word 'remarkable'. That situation s really odd, saying that you have nothing there while you have easily seen and felt bumps.
What you describe sounds like "generalized lymphadenopathy" because they are all over. But at this point we can't be sure that the bumps are lymph nodes. How big are they in general? How big is the biggest one? Did they pop up mostly overnight or grow gradually? Are they tender or even painful?
Btw, an ER is not a great place for diagnosing mystery conditions. They're more geared for handling easily diagnosed but very dangerous conditions.
1 Comments
I will get the utra sound report as soon as possible. The biggest enlarged nodes are above my collar bone which seems to be deep, the one on the lower left trachea feels over 2 centimeters and the one below my left jaw line mid way is noticable just by looking. I am only 17 years old and still under my mothers insurance and she is not supportive of my symptoms at all and seems to believe i have anxiety ( and to get some xanax ) which is ridiculous. Therfore if you could point me into a direction of those who would possibly take a closer look at my symptoms and not be so quick to take my mothers money and tell me everything okay when its not? And my nodes are completley painless, unless you are messing around with my collar bone, then i seem to have a weird sensation in my chest. And i have no asthma symptoms, no wheezing, no cough, no phlem, no nothing but the feeling of breathing through a straw. Thanks for your time again, others opinions help a lot.
Have an Answer?
You are reading content posted in the Leukemia and Lymphoma Community
An interview with the co-discoverer of one of the biggest breakthroughs in cancer research
From causes to treatment options, get answers to your questions about CML, a type of blood cancer
New drug options on the horizon may make CML, a type of blood cancer, one of the few success stories in cancer treatment
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
