Rash on legs (and other symptoms) lupus or vasculitis?

[ampky]

I have a rash up and down both legs and have never had a mylar rash.  I'm STILL waiting on a diagnosis, but have extreme fatigue, muscle weakness, joint pain and a high sed rate.  Is this rash indicative of lupus or vasculitis?  It's been almost 3 1/2 years and no diagnosis from docs.  Pretty disheartening...

[marcyh]

I was diagnosed with lupus 10 years ago - and have had a rash (mostly on my legs) for the past 7 years.  It's not the typical lupus rash.  I had several biopsies done before they diagnosed the rash as PLC (pityriasis lichenoids chronicus).  The doctors tell me that there is no link between lupus and this rash - but I'm not convinced because they are both immunological responses.  I'm not sure if this would be the same thing that you have - but it was interesting to me that the rash is also on your legs.  Have you been diagnosed with lupus?

[mercygracious]

What did your results turn out to be?  I have had the rash on arms and legs.  What did your rash look and feel like?  How long did it last?  What are your other symptoms?  I have the ones you have mentioned above and a whole lot more as well (too numerous to mention).  I have gone 6 yrs with no diagnosis and even went so far as to go to the Mayo clinic and came back home with a wrong diagnosis!!!!!!!!!!!!!!  I am so tired of this!!!!!

[brokenmanjp]

Did you go to the Scottsdale AZ Mayo for your bad care also? I have bben to Mayo in AZ and Johns Hopkins in MD with wrong as well as bad care. I have all the sypmtoms of Lupus and a few of the Labs also. I also did have the Labs for Wegener's Vasculitis also from the May but then they sent me home ans said I was ok lol. Sent me home with a walker and alot of meds but I was ok huh... What a joke.. I can go on and on about the bad care I have receiveved and them telling me I'm ok. I have swollen joints, loss of vision and a low platelet count as well as being in and out of Kidney failure.For some reason When we do the labs I ask for after I do the study on things they come back positive...Imagine that!   I'm now positive for Lupus Anticoagulation, HLA B27 pos+, History of Glaucoma and a shunt in my R eye, Use to walk run and dance just fine but now I'm in a wheelchair but was told I was ok. Also the whole time I been pos+ for PR3 every time but only 2 times for the C-ANCA ratio 1:8 and 1:24. I also been confirmed as to have ITP and Gammaglubulenemia. After looking at all  my pld blood test for thae last few years besides the vision issue I have almost always been low on platelets but no doc ever took the time to figure it all out.  They sure jump to conclusions to tell me I was crfazy though.. I would love to talk to all of you and share stories because this is the only way we can help eachother out.
JP