Hey everyone I'm not diagnosed with Lupus but my pcp thinks I might have it. I have seen two Rheumatologists who all say no with in the first 5 minutes. They said because I don't have arthritis that I don't have it. I do have a positive ANA and everytime I'm tested for it it does get higher. Here are some of my symptoms; fatigue, muscle fatigue and weakness, tingling in hands feet legs and face, headaches, heat intolerance and balance issues. I do have some joint pain but I think its from past injuries. I don't always get inflammation or redness so no arthritis. I've been tested for Lyme they said no. I've also had an mri of the head which came back normal. So kinda unsure. How do they judge if you have Lupus and do you have to have arthritis? I've heard there is 11 things but what are they? Thanks for listening sorry was kind of long.
1 Malar rash - fixed red rash over the cheeks
2 Discoid rash - red patches of skin associated with scaling and plugging of the hair follicles
3 Photosensitivity - rash after exposure to sunlight
4 Mucosal ulcers - small sores that occur in mucosal lining of mouth and nose
5 Serositis - inflammation of the delicate tissues covering internal organs
and abdominal pain
6 Arthritis - very common in lupus, pain in the joints
7 Renal disorders - usually detected by routine blood and urine analysis
8 Neurological disorder - seizures or psychosis
9 Haematological disorder - haemolytic anaemia, leukopenia, thrombocytopenia
10 Immunologic disorder - tests on LE cells, anti-DNA and anti-SM antibodies
11 Anti-Nuclear Antibody (ANA blood test) - when found in the blood and the patient is not taking drugs, it is known to cause a positive test for lupus in most cases, but is not necessarily conclusive
Other test done to help diagnose:
Full Blood Count (FBC) - Detects anaemia, low platelets, low white blood cells
Creatinine and electrolytes - Measures the salts in the blood and gives an idea of kidney function
Liver function tests - Includes measurement of liver enzymes (indicator of liver cell damage). Measures albumin (marker of kidney problem with leakage of the proteins)
ESR (Erythrocyte Sedimentation Rate) - A marker of non-specific inflammation, tends to be raised in lupus
CRP (C-reactive protein) - Another inflammatory marker, but this does NOT usually go up in Lupus
Urine - Measure protein and blood cells in urine (should be none). Identify ‘casts’ (blobs of protein escaped from the bloodstream because the kidneys are leaky)
Blood clotting tests - Tell how ‘sticky’ the blood is. Includes ‘lupus anti-coagulant’
low vit D levels
shortness of breath
blood in urine
hair falling out (27%)
muscle pain and weakness (90%)
poor circulation in fingers and toes
tingling in extremities
raynauds (where fingers turn white when cold)
intollerance to cold
lymph node swelling (50%)
...to name a few
If I remember right one of my ANAs was 1:80. Not sure about pattern. I guess I don't really qualify for any of the 11 so I can see why it was a no then. Wish doctors would tell you that. Back to square one thank you. I see a neurologist Thursday and another rhuematolgist next week, see what happens.
Your ANA is really low and is considered negative.
Has anyone checked you for fibromyalgia. Another possibility is chronic fatigue, or lymes. I know they tested and it came back neg. But that doesn't necessarily mean its the end of the story. Another tick born illness is Rocky Mountain Spotted Tick. I would suggest you pcp test you for that. There is a lyme test that others suggest, but I'm not as familar w/ what it is called. Something about Western Blot. I encourage you to do a search on MedHelp.
Another possiblitly is low vit D level. Ask your dr. to test your vit. D.
Also ask about B-12. Low b12 can cause tingling symptoms. Low magnesium levels can cause muscle spasms and neuro type symptoms.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.