aortic dissection

[mindersmomof2]

Hi, my husband who is 32 years old had a dissenting aortic dissection in October. He had a very very slim chance of making it and he did.  He had 2 eight hour surgeries and survived them.  He had no blood flow for 5 days down the right side causing him to lose his kidney, part of intestines and almost lost his leg! he was in ICU for 2 and half weeks and just kept having things go wrong.  Afterward his incision got infected and he put in the hospital another week for surgery to remove the infection, which went in his blood stream too. But here we are 3 months later and he is still so weak. It is hard for him to do much, he never used to sweat and he does so bad just sitting down. He has a hard time walking or doing any activity.  Also, he has bad spasms in his right leg it jumps all over when he is sleeping at night.  He also is super sensitive I can not touch that leg, it feels weird and he has spots of numbness in spots on his leg. We have no idea what is normal after such a horrible life changing event like he went through. He lost 3 weeks of his life, he can not remember that week leading up to the dissection. Also, his dad died of exact same thing when he was only 32 years old, scary. It does run in the family. We have two little girls also 9 and 6 and I worry so much about them. I'm scared of this happening again, please help us.

[remar]

Your very welcome. I know what you and your husband went through and are still going through must be terrible. It's going to take a long time for him to get back to his his normal self, so hang in there. It does sound like he needs to have more testing done on his leg to check for blood flow.

[mindersmomof2]

Thank you so much for the encouraging words! I know a lot of these things going on is from everything he went threw, we just get frustrated and want some answers :)

[remar]

After your husband going through so much it's going to take him a long time to get his strength back.
Is the leg he's having problems with the one he almost lost? If so, that could be the problem. Loss of blood flow to it for so long. Sorry, I just read your post again and see that it is the same leg. He could get sensation back in it and be rid of the numbness or it could always be this way. It's hard to say. I take it he's having regular Drs visits? He needs to so they can check his progress and keep checking on his leg.
I'm so sorry to hear your family has been through such a terrible thing. Your husband is young and he has that on his side. And he has you and your 2 girls.    Remar