Hi,
My daughter who is now 16 years old was diagnosed with Daily Persistent Headaches in June of 2006. Her symptoms of her headache started on April 30th. She had just come home from a golf tournament over the weekend, and that Monday morning she was not feeling well. Achy, nauseated with vomiting, dizzy and lightheaded. By Wednesday she had a horrible headache. Located on the left side above her eyebrow. The headache is still there. It has never gone away, she can feel it every single day. There has never, ever been a day when she can not feel it. Long story short, we had MRI, CT, with and without contrast, all normal. All blood tests normal. She did have an EBV run and that did show a past infection. She had allergy testing done, not allergic to a single thing. Her blood pressure seems to run on the low side, but she is very athletic as well. She currently has been on Periactin 4mg 3 times a day, and Elavil 25mg 1 at bedtime. In the beginning of trying to get the headache pain in control because she got to the point she was in tears it was hurting so bad. Nothing would touch the pain, Vicodin, Tylenol #3, Advil. We went to U of M Neurology they felt since her headache pain was not keeping her home from school that she didn't need to be on anything. I tried to tell them that her physical activity had suffered that she no longer could play golf due to the pain with walking and carrying clubs. I was frustrated with them and decided to try the Headache Clinic in Ann Arbor. They are now the ones who see Sarah, and the medication she is on now have kept her headaches under control. She can do all of her normal activities without any problems. At times the headaches seem to be more intense, and she also has had physical therapy, as her headaches were worse while laying flat on her stomach looking up, or during a sneeze she would get a rush of pain, since the physical therapy those symptoms have gone away. If she does not take her medication on time she says her headaches pain increases. I guess I am just thinking we are coming up to 2 years with a constant headache, any other suggestion. At our last visit to the headache clinic I asked what the plan is for the future, his response was this could be indefinite. I didn't want to hear that. Could that be the only answer? Will she be on this medication forever? Do you have any suggestions, ideas, would she benefit from a visit from your clinic? Thanks for your time,
Peggy