Muscular Dystrophy Community
Dignosis help required for three kids
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Muscular Dystrophy (MD) refers to a group of more than 30 inherited diseases that cause muscle weakness and muscle loss and eventually cause you to lose the ability to walk. Discuss topics including Duchenne muscular dystrophy (DMD), other types of MD, symptoms and ways to improve quality of life.

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Dignosis help required for three kids


My three kids are suffering with some neuro muscular problem. Kindly help us for diagnosis, management plan and treatment as GOVT OF PUNJAB PAKISTAN is going to favor us for treatment, they need at least a six month treatment and rehabilitation plan cost. Kindly your urgent favor will be very help full for us.
  
  
Nida (daughter) 13 years old 02/10/1997
Birth Normal Delivery
Weight at birth 8 pound

1- Complaint for swear abdominal pain in 2005 with a fever of 105 F with chest congestion


2- Typhoid -ev,  malaria -ev, flue and influenza +ev


3- After hospitalization at UAE (Sharjah) Zulekha Hospital and intravenous various Antibiotics after five days temperature was settle.


4- After this she started complaint for pain in legs


5-2006 she felt difficulty for climbing stairs


6- Gradually lost her lower portion energy later upper muscles also involved


7- Predinsone was used for one month, significant difference in Cardiac enzyme it reached CPK 3000


8- Usag of Royal jelly and Honey + Coq10 enzymes + Osteocare Syrup


9- 2010 Heart Eco show normal heart function


10-12- Rahabdomyolisis/ miositis/ vitamin deficiency are the possible reason

·         Now she is on Wheel Chair

·         General body growth is normal

·         Mentally sharp, active and brilliant







Ahmad (Son) 11 years old 31/12/1999
Birth Normal Delivery
Weight at birth 8.2 pound

1- Complaint for swear abdominal pain in 2008 with a fever of 105 F with chest congestion


2- Typhoid -ev,  malaria -ev, flue and influenza +ev


3- After hospitalization at Shafique Hospital at Allama Iqbal Town Lahore and intravenous various Antibiotics after five days temperature was settle.


4- After this he started complaint for pain in legs


5-2009 he felt difficulty for climbing stairs


6- Gradually lost his lower portion energy later upper muscles also involved


7- Predinsone was used for one month, significant difference in Cardiac enzyme it reached CPK 5000


9- Usage of Royal jelly and Honey + Coq10 enzymes + Ostecare Syrup


10- 2010 Heart Eco show normal heart function


11- No Biopsy


13- Flue type condition and white balgham regularly come since 2009


12- Rahabdomyolisis/ miositis/ vitamin deficiency ?


·  Now he is on Wheel Chair

·  General body growth is normal

·  Mentally sharp, active and brilliant





EMAN (Daughter) 6 years old   07/03/2005
Birth Early and Normal Delivery at 8 month
Weight at birth 7.5 pound
.
1- Complaint for swear abdominal pain in 2009 with a fever of 105 F with chest congestion


2- Typhoid -ev,  malaria -ev, flue and influenza +ev


3- After hospitalization at Dr Hospital Lahore and intravenous various Antibiotics after five days temperature was settle.


4- After this she started complaint for pain in legs


5-2010 she felt difficulty for climbing stairs


6- Weak but actively running and doing her activities


7-Significant difference in Cardiac enzyme it reached CPK 16000 in Jan 2011 and Now in March it 6000.


8- Usage of Royal Gelly and Honey + Coq10 enzymes + Osteocare Syrup


9- 2010 Heart Eco show normal heart function


10- No Biopsy


11- Flue type coough caught easily


12- Rahabdomyolisis/ miositis/ muscular dystrophy/ vitamin deficiency are the possible reason


Now she is moving running but feel difficulty when sit and than stand from land.


General body growth is weak


Mentally sharp, active and brilliant








Parents Blood Group


Father O+ev


Mother A -ev





In Lahore Pakistan mostly doctors mention it not treatable due to lack of diagnosis facilities (As less knowledge and easy to mention)

Kindly try to help me to find some research and investigations instead of stereo type diagnosis.

Its request to symptomatically look these case as hopes of a family lying with you.


Shahid Zubair




Mob No. 00923008424479



576 L Block Johar Town Lahore

Pakistan  










4 Comments Post a Comment
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209987_tn?1334790318
Sorry for the delay in response.

It sounds like they have all had a bad reaction to some sort of infectious virus or something. If they all had high fevers, and then they started experiencing symptoms, this would indicate something other than muscular dystrophy.

There are many types of muscular dystrophy, but the most common one usually starts at around the time they would begin walking. By the age of four it would be apparent that it was muscular dystrophy.
They would start walking, running, etc and then they would start to crawl again.
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It does indeed sound like an infection. Have they been tested for polio?
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Ric Thanks
Kindly help us aby advising some information for diagnosis facilities.
Please see our webite www.miracleforthree.com
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tshack thanks
I agree and same is my opinion that its some type of viral attack on their nervous or skeltal system. Need proper diagnosis. We appericiate your help please visit our website
www.miracleforthree.com
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