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Meningeoma, Headaches and seizures
I am a 36 year young female and was told I have a right parietal meningeoma of 4mm. It is supposed to be in my frontal lobe. About a week later an EEG was done and indicated sharp discharges in both hemispheres of my brain. I have been having horrible headaches since at least 10/20 of this year that get to the point of nausea. They are sharp and never completely go away. Just vary in intensity to more bareable at times than others.
The EEG report suggested to consider complex partial seizures. I was placed on Topamax to which I had a bad reaction and was taken off after two weeks. I am now on Trileptal for now to see how my body tolerates that. WHatI need to know is if there are any other tests that can be run to confirm if in fact those spikes or discharges are complex partial seizures. The only physical manifestion I presented with was a tremor in my right arm. I am confused and discouraged with the lack of information I am being given. I've not eaten a real meal in over two weeks, my body is weak, the headaches and nausea are not very uplifting. I am not driving due to those symptoms for my and everyone elses safety. Can the tumor have something to do with the seizures also? What can be done about my headaches? I do not believe that putting my on vikidin is the solution to the problem. Please someone help.
The EEG report suggested to consider complex partial seizures. I was placed on Topamax to which I had a bad reaction and was taken off after two weeks. I am now on Trileptal for now to see how my body tolerates that. WHatI need to know is if there are any other tests that can be run to confirm if in fact those spikes or discharges are complex partial seizures. The only physical manifestion I presented with was a tremor in my right arm. I am confused and discouraged with the lack of information I am being given. I've not eaten a real meal in over two weeks, my body is weak, the headaches and nausea are not very uplifting. I am not driving due to those symptoms for my and everyone elses safety. Can the tumor have something to do with the seizures also? What can be done about my headaches? I do not believe that putting my on vikidin is the solution to the problem. Please someone help.
Hello again,
I finally received a copy of my MRI report and see that the meningioma is in the right parietooccipital cortex. Does that make a difference concerning my seizure activity or can it still be the cause of those? I had two Drs telling me different locations and I am glad I requested a copy of the report to read for myself. Of course I am clueless as to that the location exactly means.
Thank you so much for all your help.
Sincerely,
Friend
I finally received a copy of my MRI report and see that the meningioma is in the right parietooccipital cortex. Does that make a difference concerning my seizure activity or can it still be the cause of those? I had two Drs telling me different locations and I am glad I requested a copy of the report to read for myself. Of course I am clueless as to that the location exactly means.
Thank you so much for all your help.
Sincerely,
Friend
MEDICAL PROFESSIONAL
Dear Friend,
I would suggest you to continue with the present medications and not to alter any sort of dosage until you physically meet the same doctor or new doctor as dose titration of these drugs are vital.
I am not allowed to prescribe you any sort of medications here as it requires proper examination.I hope you understand.
As far as the stress pattern is concerned, i fully agree with you.The lesser you stress out, the better are the results.
Regards,
I would suggest you to continue with the present medications and not to alter any sort of dosage until you physically meet the same doctor or new doctor as dose titration of these drugs are vital.
I am not allowed to prescribe you any sort of medications here as it requires proper examination.I hope you understand.
As far as the stress pattern is concerned, i fully agree with you.The lesser you stress out, the better are the results.
Regards,
Thank you so much for your response! What you're telling me makes sense! I thought all along that the tumor might be linked to the seizures but my Neurologist remains insistant upon it being too small to cause any such things. I am changing Drs.
So with me now being on anti convulsants (Trileptal 150mg twice a day and the day after tomorrow 300mg twice a day) can that back fire since my seizures depend on what the mass is pressing on at a particular time? I know you said you will not comment so if your stance remains I understand. I cannot get in with a Neuro Surgeon until Feb.
My Neurologist also referred me to a surgeon but he told me I was placed on a waiting list because I am considered a non urgent case. I don't know, but all that this little mass can do to me seems urgent enough to me. I am still trying to find a new Dr. and Surgeon I can get in with sooner.....In the mean time all I can do is reduce external stressors and not stress myself out about the situation, and I am determined to do well with that:-)
Any suggestions would be greatly appreciated!
Thank you again...
So with me now being on anti convulsants (Trileptal 150mg twice a day and the day after tomorrow 300mg twice a day) can that back fire since my seizures depend on what the mass is pressing on at a particular time? I know you said you will not comment so if your stance remains I understand. I cannot get in with a Neuro Surgeon until Feb.
My Neurologist also referred me to a surgeon but he told me I was placed on a waiting list because I am considered a non urgent case. I don't know, but all that this little mass can do to me seems urgent enough to me. I am still trying to find a new Dr. and Surgeon I can get in with sooner.....In the mean time all I can do is reduce external stressors and not stress myself out about the situation, and I am determined to do well with that:-)
Any suggestions would be greatly appreciated!
Thank you again...
MEDICAL PROFESSIONAL
Dear HealedNow,
Can understand the stress and pain and insecurity you are going through.As you said, lack of information, is the main cause of all these.
But believe me, the dissatisfaction would only worsen this.
Meningiona is one of the most (Second) common tumors of the CNS (Central Nervous System) which are usually benign but can turn malignant.They arise from the meninges.
The behavioural change, which you have noticed is due to the tumor location. In frontal/Subfrontal location, it may also cause 1)Urinary Incontinence, 2) Dis inhibited behaviors, 3) Progressing weakness in the extremities, esp. legs.
Also meningionas are known to cause raised intra-cranial pressure, which causes headache,altered behavioural pattern, etc.
As far as your question related to -other investigations in relation to partial complex seizures, i think, it's not required, because at this stage we already are through with the diagnosis of this condition.The cause of seizure is the persistent irritation of the underlying cortex, by the tumor mass,no matter how small is it.
Treatment pattern is purely a discretion of the treating neurologist/neurosurgeon. The stressful pattern of yours will only add up the seizure chances as the brain is not getting the relaxation.
I will not give any comment of the medications as the treating doctor needs to be trusted, if not , then better to change him.
Feel free to ask us more.
Regards..
Can understand the stress and pain and insecurity you are going through.As you said, lack of information, is the main cause of all these.
But believe me, the dissatisfaction would only worsen this.
Meningiona is one of the most (Second) common tumors of the CNS (Central Nervous System) which are usually benign but can turn malignant.They arise from the meninges.
The behavioural change, which you have noticed is due to the tumor location. In frontal/Subfrontal location, it may also cause 1)Urinary Incontinence, 2) Dis inhibited behaviors, 3) Progressing weakness in the extremities, esp. legs.
Also meningionas are known to cause raised intra-cranial pressure, which causes headache,altered behavioural pattern, etc.
As far as your question related to -other investigations in relation to partial complex seizures, i think, it's not required, because at this stage we already are through with the diagnosis of this condition.The cause of seizure is the persistent irritation of the underlying cortex, by the tumor mass,no matter how small is it.
Treatment pattern is purely a discretion of the treating neurologist/neurosurgeon. The stressful pattern of yours will only add up the seizure chances as the brain is not getting the relaxation.
I will not give any comment of the medications as the treating doctor needs to be trusted, if not , then better to change him.
Feel free to ask us more.
Regards..
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