Thank you for your comment! That actually helps a lot.
Ive read somewhere that trauma issues dont tend to be degenerative so why do I feel like things are getting worse? It seems as though you're having the same issue.
I've seen multiple docs over the past 2 and a half years. At least 7 or 8 and I get the same sort of vibe from most of them. They tell me if there's been no significant discovery then my problems are in my head... ive been seeing a new doctor lately and hes been quite good. Seems to get a little irritated and keeps telling me try not to worry but hes atleast putting steps in place to determine what it is...
I havent really had any major issues with moods or anything like that out of the blue. I still seem to be in control of that but obviously this whole situation gives me anxiety. Im only just starting out my life and I want to be able to enjoy it...
Thank you again so much for your comment, it really means a lot to me!
Sorry to hear about all the trouble you're having. I hope it gets better.
I had a lot of issues with chronic whiplash syndrome. For years it was just lots of neck and jaw pain. But over the last couple months a lot of crazy neurological stuff started happening. Facial numbness, issues with balance, blurry vision, pins and needles in the extremities while trying to stretch etc...
But the worst part was the mental stuff. It affected my mood and made me a different person, tough to be around, always losing my temper. Then when the neurological stuff got going the last couple months the mental and emotional side went nuts. I started getting really scared for no reason and just feeling awful.
I think I was on the verge of having a seizure, constantly. I ended up getting Ativan in the ER and that has helped me so much. I feel so much better now.
If there's any sort of mental/mood side to your symptoms, I'd at least try an anti-convulsant like Ativan. Just to see, it was like a magic pill for me. Although our cases and symptoms are not exactly the same.
I had a ton of scans, MRIs, CT scans, none of them really showed anything. I think there might be something small in what's called the craniocervical joint complex (basically right where the spine meets the skull) like some scar tissue or some slight damage. Even small trauma there can totally destroy your life and it's tough for them to see it with normal scans.
I'd try the meds first, just keep going until you find one that helps, but make sure you cover all the bases as far as what they address and definitely try something like Ativan.
If the meds don't help and the scans you're trying don't see anything, then I'd probably try to get more advanced scans like a fMRI or Brain Electric Tomography. Could be something small they haven't seen yet.
Definitely do a ton of research into post-concussion treatments, alternatives, mainstream and everything in between. Be prepared to try anything that's sane, it will make you feel better at least if you're always working on it and not just giving up.
And always show up for your doctor's appointments prepared with your research. Don't let them treat you like a cookie cutter patient. Do your homework and stand up for yourself, don't be afraid to ask for what you think you need.
There's a lot of docs out there who are just punching the clock and don't ever go an extra mile. So if you have a complicated and chronic condition that's resisting treatment then you need to find somebody who's going to at least care about you and/or be interested in solving the puzzle. You should be able to tell by how they respond to your questions and research. If they act irritated, like they just want you to shut up, then drop them and get somebody else.
Good luck