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3 years of csf headache
by Rosa315, Oct 03, 2009 02:12PM
I have had 3 yrs. of what I know is a csf headache, or low pressure headache, as I had a major csf leak during a back surgery a 3 years earlier and know the difference from any other kind of headache. The problem is the Dr.s haven't been able to find a leak. I have had myelograms and Dr.s have found numerous cysts on my nerve root endings , several in the cervical area, one in the thoracic area, and one in the sacral region. One burst last summer and I had surgery to patch it, a blood patch wouldn't work. But I continue to have headache.
Usually the day starts out alright, but headache gets so bad by afternoon I find most of my time is spent lying down, the only thing that makes it go away. I have low blood pressure, and often am feverish at night. All tests come back normal. Any idea on how to find where this darn leak could be coming from?
Usually the day starts out alright, but headache gets so bad by afternoon I find most of my time is spent lying down, the only thing that makes it go away. I have low blood pressure, and often am feverish at night. All tests come back normal. Any idea on how to find where this darn leak could be coming from?
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