Attention: head pressure, pressure in head, headache people!

[Citizen T]

Hello everyone, after suffering for nearly 2 years with a mysterious neurological-like condition, I have almost given up all hope of living a normal life again. After a whole lot of research on the net, I have run into several postings with people describing my condition almost down to the exact letter. However, many of these posts are on some obscure website with the postings being months or years old. The purpose of my post here is to *hopefully* unite those of us who suffer from this unexplained condition.

The one symptom that seems to bond us all together is a constant "pressure" sensation behind the forehead and beneath the front top of the head. The way people describe this varies according to personal expression, but it is usually best described as an expanding sensation behind the forehead as if the brain is growing larger with nowhere to go. The headache is dull, non-throbbing, and does not get worse with exercise. The patient will also describe a sort of "perpetual dizziness" that may be constant or may come and go again. Usually, but not allways the patient will describe the sensation of having a constantly blocked nose even in the absence of any type of discharge or sinus infection. Most but not all patients will describe a feeling of tension or stiffness in the cranial muscles, especially in the forehead.

[angelagreen]

https://nei.nih.gov/health/iih/intracranial

[spunks99]

Did you check your thyroid hormone level?. I was diagnosed with high tsh level, I had panic attacks like stiffness of head muscle tightness of nose eyes pulled ear ringing, extremely sensitive to sounds or noise heart palpitations but all these were related to low hormone level. I am on levothyroxine 125 mcg that helped a lot. I quit it for 1 month after 2 years and I ve the same trauma.Dr advised never quit its for life.

[Romainit]

Have you been tested for PoTS, read up about it and then there is a doctor in the States, New York, who can help you, his name is Dr Eric Kaplan, he is very different from any other doctor I know, and definitely can help, he helped me to diagnos my condition which is the same as most people have on this site, heavy feeling at the top of the head with head aches, dizziness and dehydration and bad concentration, plus a load of other ****. I've had it for years.if kapan can't help, he will put you in contact with someone that can.

[vickkm]

i had the cold i think for a week. i finally got better. but now every morning i wake up and with this pain on my forehead. right above my eyebrows and in the middle of of my forehead. it eventually goes away over time. but then its starts all over again the next morning. what the hell is this.i cant stand this pain anymore

[lward70]

I have had similair symptoms as you, brett88. For the past 6 mths. It began with a strange feeling of lightheadedness, yet not lightheaded, not dizzy. Almost a floating feeling. My hands and feet felt strange, sometimes a slight tingle or a weak heavy feeling. An all over foggy feeling. My ability to make or hold a conversation is slim to none. Very little emotion. My head feels full, my ears too especially upon standing. A very loud wooshing sound as well as loss of hearing during these episodes. This just stinks. I dont know how to explain it to anyone.

[Sweetness2800]

Hi I am feeling the same thing at this time have u found out what it is...I have been for many test...still nothing gets worst when I hold my head back

[Rainbobrightkdw]

let me know if u hear of anything that helps. My symptoms are identical.  No one believes me.    They test me like I'm making this stuff up. It's hurts so bad at times.  I feel like any moment I'm going to die