Body Jerks, But Awake

[ashezbryan]

My wife has (from what I've researched) hypnic jerks while falling asleep and while sleeping. We've been told this is normal. What isn't normal (in our opinion) is that she has these when she is awake. She might be reading, walking, writing, talking, or pretty much any activity. Some days she'll have quite of few of them and other days she won't. But she does seem to have more when she is tired or stressed. She's had an MRI and an EEG but the doctors told us they didn't see enything abnormal. I think they gave her Clenazopam (only if I remember right) but after awhile it stopped working. Has anyone else experienced this?

[Guess1985]

Hi there my name is Cindy and I just turned 30years old i wasnt born with it but i got my jerks from stress and depression, my jerks is such an insault for me because i cant control it and people still laugh at me when i get the jerks. sometimes my jerks is so powerfull it pushes me back with a huge impact as if someone push me to fall backwards.sometimes it happens as if someone pushes me to fall faward into something.with my jerks in the 20years now i have fallen my head open 8times on the same spot everytime, almost broken both my anckles this past december 2014 brused my head and body alot,to be honest my sickness took my briteness and model future away i could never except this myoclonic epilepsy sickness of mine i also lied about my sickness to my friends in school otherwise i would never had any friends at all.my biggest wish ever was to be normal without this sickness and to have my licence and own car and great work and today i must live with a babysitter  on my side...people i cry so much i hate it

[mattmatt11]

this is happening to me as well im 15 and even if its the slightests noise in jerk real fast and while im dozeing off

[CHRISTINASIM]

sounds like lyme

[lvsmedwonder]

Same here with me!  I am now taking more Parkinson's medicine than most severe Parkinson's patients.  If I don't, instead of twitches that lead to tremors, that then lead to jerking all over my body. After that, I begin to violently jerk so hard that by body literally would knock my husband out of the bed while he was alive.  I have also began falling backward to the degree that I have injured my spine and must now have major back surgery. Like many of  you, the jerking gets much worse when I am very fatigued or go for long periods without sleep, which is very often because I have horrible insomnia.  I also get where my speech is slurred and then is completely  unintelligible. I did have a massive stroke in my sleep in 1996, at 48.  I am military officer's widow and I live alone with my three dogs. Sometimes I have been injured by the falls and jerking body that I have been taken to the emergency room, where, of course, they knock me out with heavy drugs/  Is there anyone who has similar problems and has gotten a read diagnosis?  I will be soooo grateful for any help  you can give me.  This is destroying my l ife!

[doodman]

im seeing the same symptoms you speak of in myself and just about everyone around me and its scaring the hell out of me. seriously now 9/10 people i know now have this. and the sad part is no one ever used to have it but in the past 2-3 years everyone now has it and the conditions are becoming worse within all of then. i dont know what else to expect other than the food we eat amd chemicals all around us. i mean who knows whats even in our food with all the hormones, GMOs, pesticides, and MSGs... this is something that seems to be if you dont have it now it will effect you soon enough. ive watched family,friend,and stranger unvolintarily move limbs... limb after limb and with my symptoms il be the next to move limbs...  daily i have small muscle twitches and are progressively getting worse as days go on and recently have had a few involuntary limb movements but since with the occurance is hard to deter from natural flinch or this sickness... its hard watching the people i care for slowly decline and im next in line... this sickness has a bit more to it than face value... and btw no doctor will cure you. pray to god for an answer

[TyRay]

My 3 year old son is having the same symptoms that most of you are referring to. It is non stop from the time that he wakes up in the Mornings, and stops only after he falls into his sleep. We are currently at Scottish Rite in Ga. He is going throught the Process of ruling out this and that. I'm being told that it is a Movement Disorder.  They have started him on a medication tonight. What have you Learned, and can you give me advice?