I live in Bangalore, My daughter suffered brachial plexus injury during her birth, hence she is unable to move her right hand, she is about 3 months old now, we started with Physiotherapy since she was 15 days old.
We can see that she is moving her biceps to some extent, however, she is unable to move her forearm and wrist. request if anyone can guide us to a Paedriatic neurologist who has specialized in Brachial plexus injury for infant and also a physiotherapist with similar experience.
Even my daughter is also facing the same problem. She is not able to move her right hand right after birth. She is in her 3rd month.
We are doing physiotherapy exercises now.Very worried about her hand.
I too live in bangalore. Can you pls suggest me some good hospital or doc's who can help me.
How is your daughter now. Is she recovered. Can you pls guide me thru the steps yu followed for this.
I live in bangalore and my daughter is also facing the same problem since birth with her left hand.now she is 4 months old and is moving her biceps little bit but no movements below elbow.we started doing physio from 3rd day onwards, and recently we consulted a hand surgon , he advised for an MRI scan,that shows 4 out of the 5 nerves are effected.so natural recovery is not poosible and advised for surgery.
what abt your baby.how is she doing right now.Have you consulted any doctor?can you please guide me through the steps you followed.
please reply to me as we are very much worried about the baby.
Sorry to hear that and I can understand the trauma you must be going through. we consulted Dr.Taranath Shetty, paediatric neurologist at Philominas hospital, Bangalore, He has more than 40 years of exp in this field in the US. You can consult him, he is the best in Bangalore.
we are going for Phsio and stimulation at Manipal.
my suggestion is, restrict the normal hand by putting it into the shirt so that, we encourage the baby to use the affected arm. this is the best practice which will help the baby's recovery and offcourse regulay exercise at home.
let me know if you need more info.
God bless and I pray your baby gets full recovery,Inshallah!!
I have similar situation with my daughter, where 2 nerves has root avulsion. the best is to consult Dr. Taranath Shetty at Philominas hospital, he will guide the best.
also, physiotheraphy can do wonders, please continue the same with patience. nerve has the slowest recovery process in the body.
I understand the pain, there is hope, I am sure your daughter will show promise. let me know if you need more info.
thank you so much for the response.
we contacted the Philominas hospital but Dr. Taranath Shetty was on leave from today for one month.mean while we consulted Dr.Bharat K Kadadhi of Bangalore hand centre hospital, advised for MRI scan,it shows 2 nerves are stretched and 2 are ruptured and advised for surgery as early as possible as there is much scope to improvement.
what is the treatement advised to your baby by Dr. Taranath Shetty?Dr.Bharat advised surgery for my baby with in a week time.i want to know surgery is the only option available? if possible give me your contact number.please reply me as early as possible
Even my daughter has same condition....
Are the doctors sure, even after surgery her hand will recover and will be normal..
Please take a second opinion from another doctor before taking up a step to surgery.
So tell me after surgery, will baby's hand recover completely. Will she be able to lift her hand and lift the things after the surgery.
Thanks a lot for your response yaar.
I will surely check with Dr Taranath Shetty at phenomenon's hospital.
Tell me how is ur daughter' hand now.
I am very afraid yaar. Is surgery required for this small kid.
Atleast after surgery will she recover completely.
we are doing Physiotherapy at home currently.
Is there no chance of getting recovered normally.
How many months old is ur baby now. Is she recovered now.
Please provide your valuable suggestions.
Thanks a lot once again for giving the infm Ravi.
We were suggested by Dr.shetty not to go for surgery as there is a root involved, however, it is very difficult to say anything about surgical results as it has been a controversial discussion about surgery in case of nerve related injuries.
Having said that, i have taken 15 opinions so far about my daughters case right from Parijma, Appollo in chennai,hyd. Rainbow hospitals, narayana hrudalaya, Manipal hospitals, st.johns etc....... They all have suggested for physio,stimulation. We are not going for a surgery as on now and my daughter is 9 months old. She has responded positively, she is moving her hand about 40% so far. We are doing this program at Manipal for 3-4 times a week.
Since there is stretch and rupture in your daughters case, I would strongly recommend to take at least 5 opinions before any decision for a surgery.
I know there is no sure shot direction in this kind of treatment which makes it even difficult.
I have heard surgery can yield possible progress in case of stretch/rupture. However, I am stressing again, please take as many opinions as possible about surgery. Don't hurry up!!
Please contact me on ravi.***@****, we can interact there.
how is ur baby? how old is she?
doctors told after surgery there is much scope to improvement provided physiotherapy should continue atleast for 2 years and there will be better results if the surgery was performed at an early age.
i talk to a lady whose sons 5 nerves are ruptured, surgery was performed at 7 months age and now he is 2 years old, his hand movements are 90% normal and he is able to lift small weight objects.so definetly there is some hope on surgery but doctors will not give us 100 % guarantee.let us hope for the best
thanks for ur response.doctors are giving differnt suggestions , one suggests for surgery and the other for physio.. we are in dilemma whether to go for surgery or not,as doctors told surgery at an early age will give better results.
i know a kid whose right hand was recoverd 90% after surgery and he is now 2 years old.
do u know anybody who opted for sugery?
is ur child moving her fingers and folding her hand?
can u tell me the doctors name and adress of Manipal?
My baby is moving only 3 fingers and flickering movement of the rest 2 fingers.
Elbow movement has improved, however, we beleive there is room for improvement.
Also, every case is unique, I suggest not to compare our cases with anyone else as there are different levels of injuries.
We are consulting with Maheshwarappa at Manipal who has specialised in Physiotheraphy.
however, Dr. Sujay Roa at Philominas hospital has vast experience in neuro surgery for infants. you may consult with him about your daughters case.
You may also consult with other doctors too to get multiple opinnions specific to your daughter.
my baby is 3 month old and he has brachial plexus injury at right upper limb by birth.he can move his fingers but not the shoulder & elbow.we have started physiotheropy since he is 15 days old.still no improvement.consulted neorosurgon in nagpur.told to do EMG test,test result shows complete denervation in biceps & deltoid & partial in triceps.he told that the recovery is not possible & surgery would not help,continue with physio.
After refering to another neurosurgon in mumbai he advised to do surgery as soon as possible.
my baby is only 3 month old.i dont know what to do?should i go for surgery or wait for him to grow up?
waiting for ur reply.
My baby is going through physio too and since there is a root avulsion involved for 2 nerves, I was told even surgery may not help. hence we are continuing with stimulation and physio theraphy
Here are my observation about various brachial plexus cases.
1) If there is a root avulsion, I am not too sure about surgical recovery at the first 1-2 years, may be a tendon transfer of muscle could be considered after few years. I have decided against surgery at this point for my surgery. I have seen a girl with root avulsion went through 2-3 surgeries at 3months, 6 months age. there is very little recovery and she is 1.5yrs old now.
2) If there is a stretch or rupture of nerves, a surgery can yield positive outcome, that is my understanding of my research.
In any case, continue with the Physio and stimulation.
Hope this helps.
let me know if you need more info.
God Bless your baby, I will pray.
Even my daughter has BPI and her left hand is not moving completely including arms, wrist and fingers. I saw your trail mail above, my daughter's hand situation is exactly the same as what u have explained above, wanted to check with you about your daughter's hand improvement presently, wanted to know what treatment you did for your daughter. How is your daughter hand now?
If you can please help us to get the correct doctor/specialist along with the contact details which will give us the direction as we being trying to find suitable doctor here in Dubai.
My daughter is 2 months & 3 weeks completed.
God bless your daughter & I am sure she is recovered and doing well.
I am not sure what rehab procedure you are pursuing for your baby.
Normally if there is absolutely no movement in her hand after more than 2 months.
you will have to definitely do an MRI which will reveal the type of injury as there are 5 types of BPI injuries and every injury may require its own course of rehab process.
In case of my daughter, she didnt move her hand until nearly 2-3 months, she slowly moved with regulay physiotherapy and electrical stimulation.
My daughter has 2 root avulsion affecting her wrist movements. she is 18months old, she can move her hand upto shoulder level and definetely a lot of room for improvement. we have not done surgery, we are still continuing with physio and stimulation 3-4 times a week.
Pls consult Dr. Taranath Shetty at St.Philomina hospital in Bangalore, he is really good at this. call him through the boardline.
I hope this info helps, I wish and pray you daughter recovers fast and full.
God bless you baby!!
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