I was also diagnosed with small fiber neuropathy and am really in a lot of pain.
My neurologist stated that an EMG can detect large fiber neuropathy, and small fiber neuropathy is kind of diagnosed by ruling everything else out. There's also a biopsy that can be done to diagnose small fiber neuropathy.
My EMG report said "Medial Plantar Sensory Nerves Absent Latencies Suggest A Small Fiber Neuropathy" The bottom of my feet didn't have any response in the NCV test
I am in a lot of pain, some days I can't sleep, barely walk and drive. I also have neuropathy in both legs as well. I'm have a horrible time coping with the pain and living a normal life... How do you do?
I take Ultram 100 mg 4x Day
Neurontin 600 mg 3x Day
Hi, Josh, I was diagnosed by a test called a Q.S.A.R.T. test, in 2007. I live near cincinnati, the only hospitals that do the test in Ohio is O.S.U. in Columbus, and the Cleveland Clinic/ i was told. I have bad pain in the balls of both feet, and the neuropathy continues up both legs(feels like the leg muscles have the FLU). Have had the pain since 1999. I am taking OPANA for the pain, it changed the feel in legs but not much if any in both feet. I have tried very many drugs to help with the pain. the only thing that helped much was the 3 day pain patch. Keep in touch, maybe we can help others with this overwhelming pain.
Small fiber neuropathy cannot be diagnoised by doing an EMG a Plastic surgeon did a punch biopsy on me, they go in about 7 layers of skin & they then sent it out to Mass General where they put it under a microscope looking through your Nerve fibers in your layers of your skin. I hope this answers your question!!!
I had extreme burning just to the outside of my shins and then in my feet, sometimes on my right arm and sometimes a patch right about where your appendix would be.. It started 9/95, but it wasn't severe yet and I thought it was from being cold and too wearing leggings. It went away with warm weather. It came on like a storm in 10/96 and I knew it wasn't from cold weather and legging. I first went to some local doctors with no answers, then to St. Louis where I still go no answers, so then to Mayo Clinic in MN finally in 9/97. I had a 20 minute EMG locally, then at Mayo I had a 3 hour EMG and they didn't show anything. Then they did a thermoregulatory sweat test where they coated my body with this golden powder then put me in this plastic oven and heated me to a 'core' temperature of 109º. If I sweat the powder turned a dark purple, areas where it was still gold showed the nerves were dead as I didn't sweat in those areas. Therefore the diagnosis was idiopathic (which means there's no known cause) small fiber peripheral neuropathy. There's several things that I, looking back, know could've caused it.. 3 years prior I contracted Lyme Disease, but caught it on the 13th day and was given very strong oral antibiotics and they were in the Quinilone family of antibiotics which I now know can cause neuropathy, it might have come from the Lyme itself, but I really don't think so, I was also exposed to a bonding primer which contained tolulene.. who knows, I'll never know. Anyway, they prescribed amitriptyline which caused me to gain 20# and it just made me sleep, I was still miserable most of my awake time and after 9 months it quit working, so they prescribed Celexa and it helped for another 9 months, then it quit working. They wanted to put me on neurontin and I refused and said I thought I'd try nothing. I found I wasn't any worse without any medication, so I've not had any medicine for it since about 3/99 and I've continued to improve. In warm weather I would say I really don't have any problem, but in winter I battle it, sometimes it's worse than other times, but never as bad as it used to be. I take a ton of supplements and I think they help, especially malic acid, alpha lipoic acid and I take several anti oxidants. Mayo Clinic and maybe Cleveland Clinic are the only places I know that do the thermoregulatory sweat test, but there are 3 Mayos across our country. Best of luck to you. Keep us posted.
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