Can't get any response or answers

[vanvechten]

Hello out there....I am so frustrated by doctors and others who can't give me any answers.  For 3 years I have been struggling with strange neuro symptoms.  I have a neurogenic bladder and implant....I've lost 30 pounds in 6 months without dieting....I'm 53, but my hands and legs look like my Mom's who is 77.  I have muscle atrophy, pain, although controlled by meds, thanks to a kind psychiatrist I'm seeing who is as frustrated as I am.  I've had to get ring guards because of the size of my fingers.  I get strange bruise-like places, especially on my hands, that come and go.  I have weakness in legs from knees down--cannot get up from that position without help. I have hoarseness that comes and goes and difficulty swallowing. I've been evaluated by lots of neurologists--one group told me that this has become an "obsession" and that "yoga and fresh fruit" would help.  I'm concerned about where this is going.  Over the 3 years' I've had several EMG's and spinal taps.  Someone, please respond!  Thanks!!!

[vanvechten]

Thank you for your response!  Yes; I paid for extensive testing for Celiac's.  It came back negative.

[Caryopteris]

Did anybody check you for Celiac disease??  NO I bet they didn't.  Celiac disease (a serious disease caused by food allergy) can cause about 250 different possible symptoms, including all you mention.  You probably have more little things that don't even seem worth mentioning.   Doctors always think it's in you head if it is too hard for them to figure out.  You need all the latest blood tests for celiac disease.  If that is your problem, yes, it is annoying to have food restrictions, but there are a lot more choices than there used to be.  Plus, you will feel better, maybe within a week of not eating gluten (but you will need to get tested BEFORE stopping gluten.  You will have to learn a lot and prepare food more from scratch at home, but you can feel better.  If you continue to eat wrong for your body, you will get sicker, including other autoimmune diseases and even possibly cancer.