have been diagnosed with Chari malformation type 1 and have been looking on the net to try and find out more. Only thing is that all these different sites seem to tell me different info so I was wondering if anyone here knew…?
-Will the symptoms progress and how quickly? (I curerently suffer with headaches, neck and arm pain, numb/tingly feet and legs, hiccups, dizziness, occasional black outs.)
-Can I lead a normal life if I don't have surgery?
- How successful is the surgery on average?
-How common is the condition?
-Can it lead to any other problems?
- I have heard it can cause weight gain, is this true?
-I have also been diagnosed with Cognitive disc disease – could this be caused by the Chiari? Is Cognitive Disc Disease the same as degenerative disc disease?
And any other info at all would be much appreciated
Thank you