Cramp Fasciculation Syndrome aka Peripheral Nerve Hyperexciteability

I saw the questions regarding Peripheral Nerve Hyperexciteability and wanted to respond because I was diagnosed with it three years ago. It was very difficult finding information about it because it's not well known. I live in Philadelphia and am fortunate to have Dr. Albert J Tahmoush as my physician because he has published studies on this condition.

It is most often an autoimmune condition in which antibodies attack or interfere with a part of the nerve known as the potassium channel causing an imbalance which causes twitching, cramping and many other symptoms. It behaves differently for everyone who has it. Some people have mainly cramping while most of my symptoms are sensory. I have had twitching, burning sensations, pin pricking pain, muscle stiffness, vibrating sensations and others.

As with all autoimmune conditions my understanding is that they can go into remission, but that's rare. I have learned to live with it even though it has put a number of restrictions on my life. I am treated with Lamictal, an antiepileptic medication, and it works well.

There is more information about it at the following website:

http://pnhinfo.com/

I hope that helps



This discussion is related to Hyperexcitable peripheral nerve disorder.

[Angela0054]

Also, many neurologists will blame Cramp Fasciculation Syndrome on stress or mental health issues when in truth the condition itself causes a lot of distress which makes symptoms worse. Most doctors have no idea what it is or how to treat it. It's a diagnosis by elimination and patient anxiety becomes an easy answer rather than tests.