Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum.  ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
 | 

Drugs are not working for cerebral vaculitis - what else can we try?

by Razza, Aug 08, 2008 12:24PM
A very close friend of mine was taken ill over Christmas 2007 and is still in hospital.  He was diagnosed with ADEM after around 4 weeks and given steroids which improved his condition initially but then he started to deteriorate again.  He was then diagnosed with cerebral vaculitis one month later and given steroids and low dose immuno suppressant chemotherapy to try to prevent the immune system damaging the brain.  An MRI showed lots of mini strokes in the brain which explained the confusion and memory loss and he also had a biopsy taken.  After a slow and steady recovery, in May he was discharged from hospital and continued recovery at home which was progressing really well, until a sudden deterioration at the end of May and he is still in hospital, very confused and not up to visitors so I have not seen him for a couple of months.  The medics have tried every treatment they can think of but nothing is working.  They are now looking for a special licence in order to try an experimental drug.

Prior to hospitalisation, my friend held down a high pressured job and had high stress levels as well as spending a lot of time away from home as a result of business travel all over the world.  In November he'd been sent home from work having had dizzy spells, high blood pressure and feeling faint and confused and went to see his doctor but returned to work as normal soon afterwards.

Does anyone know anything which may be useful in trying to find a treatment that might help?
Post Comment
To
Comment
Post Comment
Recent Activity
Jade59 commented on Can't get to My Medhe...
25 mins ago
margypops commented on Can't get to My Medhe...
28 mins ago
ireneo commented on Can't get to My Medhe...
37 mins ago
It's been awhile!
37 mins ago by Jules77733
Fluffysmom is ready for nerve pain to go away...
ChitChatNine commented on Can't get to My Medhe...
50 mins ago
rdh1981 commented on Can't get to My Medhe...
53 mins ago
shandi98 is very depressed and scared
RSS Expert Activity
Prevention Gains Momentum: Your Gui... 
Nov 29 by Lee Kirksey, MD
What You Don't Know About Breathing...
Nov 24 by Steven Y Park, MD
Thanksgiving
Nov 23 by Thomas Dock, Vet. Technician
Community Members