I have posted on a number of forums, and I have been told that the kind of doctor I need to see is a neuro-diagnostician, but I don't know. Hope someone here can help.
Two years ago, I gained about 85lbs. in a very short span of time, this has happened to me twice before in my lifetime, and no doctor has ever figured out what was wrong with me. Now, my whole body is falling apart, and I was a very active, healthy person until just recently, (within the last 6 months). I have had to have a scope put down my throat and have my esophogus stretched as it was too small. Then they told me I have a sticture at the top of my stomach and my stomach muscles are 'paralyzed," so I'm taking a drug called Motilium. Then, my blood pressure started going up and down, high and then normal, now it is high. Went to a cardiologist, and did all kinds of tests (except a tilt, which I don't know what that is?),l and now I have diastolic heart failure, and have been put on ditiliazam, and a diuretic for edema, because this heart problem causes water retention. Then, they discovered that I have hypothyroidism, so I'm on levothyroxin, then they said I was pre-diabetic, so I'm on metformin. I have horrible depression which they can't control with any meds, and I have EXTREME exhaustion, can barely do two things in one day! I also have chronic thrush under my breasts and am getting spider veins on my legs, a log of them. Plus, I am getting skin tags everywhere.
I get flushed and am extremely intolerent of the heat, which I never used to be, and they took some blood work and said I had a "tracer" that was positive for cancer. They isolated it to my liver and stomach area. They did an MRI and I have spots on my liver, so they did another one, and now I have a mass, but they say it's atypical.
I have rapid heart beats, at some points, I throw PVC's, and have had to go to emergency 3 times, they don't know why this happens. My blood pressure also has gone up.
I've had cortisol tests (negative), all heart related testing, thyroid checks, TSH3-4, blood work, they have no idea.
I was told I could have dystautonomia and to see a neuro-diagnostician, but I don't know who I should see!! I need hlep with that! I truly feel like I'm about to die, I feel that badly.
I checked out that dystautonomia site, and there isn't one doctor here (CO) that specializes in autoimmune diseases, figures! Another thing that was mentioned was POTS. Does anyone know anything about these, and am I on the right forum?
Any help would be appreciated, I need to know if I'm going down the right trail, as far as doctor's are concerned. Endocrinologists haven't done anything for me, and I've been to 4!
Thanks