CSF Leak, left ear

[Myklzgram]

pressure build up in left ear since May 06, partial loss of hearing. Oct say ENT, broke the membrane, suctioned the ear.
4 days later incision closed, same symptons.  ENT repeated procedure and placed an ear tube.  5 days later ear still draining fluid. Doc ordered a fine cut CT that showed a defect
of the left petrous bone posterolaterally, measuring 3-4 mm. Nov. sample taken from the ear canal, early am,tested positive of spinal fluid.  ENT said he had only seen this twice in 15 yr practice.  Referred to neurosurgeon who offered surgery to patch the defect or temporary tube, then permanent if it works, to my stomach to drain the fluid. Doc said he had only done this surgery twice before, very rare. Getting 2nd opinion late this month from Mayo Clinic in Rochester, MN.  Anyone out there that can discuss this with me?  Not sure where to turn, tired of leaking fluid, with no real explanation of what is going on.

[LeakersWife]

If you would like a good CSF leak support board, try here:

http://brain.hastypastry.net/forums/forumdisplay.php?f=126

INGRASS is right, Dr. Mokri is THE BEST on CSF leaks.  There are really only two 'experts' on diagnosis and treatment and he is #1 .... #2 is Dr. Schievink at Cedars Sinai in LA - he worked with Dr. Mokri.

[Myklzgram]

Saw Dr. Brian Neff, very informative, he is in the ENT dept. also had a consult with Dr. Michael Link, neuro surgeon. Everything was explained in detail and shown to me on films. The whole experience was a pleasure, I am secheduled for surgery Feb 1st with both docs and although scared feel I am in very capable, caring hands.
Thank you for your response, I guess, according to the docs, this is extemely rare.  Good luck with your situation!

[INGRASS]

If you are seeing Dr. Bahram Mokri at the Mayo in Rochester, you are in good hands.  He is considered an authority on CSF leaks.  He is my neurologist, although I am seeing him for other reasons.  He is a very nice person who will take all the time he needs to explain things to you.