Hello. My son was born with sensory integration and low muscle tone when he was born. With years of hard work, from age 3-5 1/2 he's overcome those issues. At age 12 all of those symptoms have come back full force for the last year and 1/2. Durning this time he's had the strangest symptoms that have stumped all doctors. Burning red ears, overheating, gagging, muscle weakness, collapsing with his eyes rolling backwards, unable to make decisions and concentrate, oversensitive to smell-touch-water, anger and rage. All of these issues come and go and other things come to replace it. He's on 3 different medications through a phycatrist to get him through some of these issues but the Dr. won't dx him as bipolar because he's not sure what's going on. The child neurologist ruled out sezure and an overactive adrenal gland and had no more suggestions. We're seeing another neurologist in a couple of months. Nobody has any ideas, help! We're getting desperate to know which way to turn.
It is very difficult when you have birth defects/developmental anomalies. The diagnosis in some cases is very difficult but some symptoms like red ears etc can occur with sympathetic and para sympathetic stimulation. What is causing this and coming to a proper diagnosis is very difficult for a neurologist. Continue the treatment and have faith in your treating doctor as this would be tough time taking care of your loving child.
You should try out multispeciality paediatric consultants to derive a diagnosis, which is very important for treatment. Till then symptomatic treatment and nursing of your son is important. Take care!
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