NEUROLOGY COMMUNITY
Hereditary Spastic Paraplegia or misdiagnosed?

Hereditary Spastic Paraplegia or misdiagnosed?

I have a family member who has been diagnosed with  Hereditary Spastic Paraplegia (HSP).  He has been through years of testing to rule out many other neurological conditions (PLS, ALS, MS).  He has been having chronic pain in his groin area for over 3 years now.  The pain comes every other day like clockwork.  He has seen 3 different urologists and none have been able to offer any assistants.  The pain is now so sever he can not eat, sleep, or function.  Could this be related to the HSP or is it possible he was misdiagnosed?  Have you heard of anything like this before?  Everyone seems to be out of answers and he can not live with this pain anymore.  I am desperate to find a specialist for him, he has seen so many neurologists with no answer.  Please help…
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