Hi again. I see that you've posed on the Sleep Disorder too. Maybe someone there can have suggestions too.
Hope you get to the bottom and get a goods night sleep.
Hi. Grungema above gave you thoughtful advice and possible explanations for what you are experiencing. Not sleeping is the worst!
My first thought was possible migraines - they can make weird symptoms. Have any of your doctors suggested something to help you sleep?
Are you still being evaluated by a general doctor on a regular basis?
Hi from the UK. You are very brave. mega applause for you for giving up. Docs don't tell you anything here, we only know our blood group if we ask!
It sounds entirely obvious that this is to do with lack of the drug in your system. But, (you have prob been tested), are they sure you haven't got a DVT?
Also, what were you like before you started the habit? It may be that the drug has been masking something which has been there for a time. They must have people in the US who are experts in this? I am not advocating your drug, but, apart from all the many negatives, I know that people with MS say it helps them. I'm not suggesting you have that at all, but it might have been dumbing down a condition. Or, from long time , constant use, maybe it's going to take you longer for your body to adjust to not having it. My daughter has just been diagnosed with basilar migraine syndrome. It sounds a bit similar but I am not a doc. I have CFS but it doesn't sound the same. However, everyone's different. My sleep's all over the place, it's 4.30a.m. now, and I'll sleep away most of tomorrow. This same daughter has a circadian rhythm problem where her body clock is all over the place. She can't work either as she sleeps, she has to sleep, when hr body tells her. a.m., p.m. night, then she sleeps about 10 hours and doesn't know what's going to happen the next day. Sometimes she's up for 48 hours at a time, then sleeps for about 18 hours. I know in the US they can give you melatonin to get you sorted, it's not registered here. Hopefully it's just a shock to the system from all the years on the stuff. Ask your doc if you can see a neuro sleep person to give you that. Supposed to be really good, people use it to counteract jet-lag too.I would push hard for another thorough exam of your legs, whatever they do to test your blood flow. I'm not a doc but I think once you get your sleep sorted you'll feel much better. Take care