I suffer extreme pain from..

[iozo]

I have Klippel Feil Syndrome, C6-C7 and T1-T2 with partial segmentation and spinibifida. Also have double scolosis and Scherrmans diease.  I do also suffer from Sprengel's Shoulder.  I can not function in a normal way of life becasue of all these .  Also i found out that i had Type 1 Diabetes about a year ago.  Could any of these diseases make me become a diabetic?  I'm in extreme pain all day every day.  I have tried physical therapy and all.  Pain just keeps getting worse.  I barely can walk, sit, or stand for more than 10-15 mins at a time.  My quality of life is in a hole.  I have no insurance to go to a doctor.  I hurt so bad i just cry.  Can someone give me ideas on how to get the pain to go away. PLEASE!

my name is andy and email is io_zo2000***@****

[dancingseagull]

Just to send a hug to your daughter.  I know what the pain is like.

[lozza591]

hi andy im sorry for you, you sound just like my daughter. she too live with this syndrome and is in constant pain, the only thing that seems to help is diazepam which the doctor is no longer happy to give her. nobody seems to listen to people with klippel feil as they dont have any answers, my 16 yr old tells me she wants to die as the pain is so bad if you want to talk more to someone who understands its lozzafivenineone at the hotplace uk good luck x