Hi,
I've had PNH for over 20 years and for the last 10 years or so the most effective dose was 400mg lamotrigine per day. But annoyingly it's got worse these past few months and I had to increase the dosage. I was discharged at Walton Centre in Liverpool several years ago but feel I'd like a new opinion. Does anyone know who or where new testing and research is taking place in the UK? Thanks, Richard