Aa
M.S me again can anyone help
Dear sir/madam,
How do I start this e-mail well to begin? Last year I suddenly got this episode of really itchy hands with confusion and the feeling of been drunk. Went to my G.P who told me I had stress. At this time I started having double vision. Was hospitalized in the local hospital and was discharged with sinuses. (MRI and ct brain fine)
Saw E.N.T Consultant all fine ECT.
During the twelve months had an episode of urine urgency, went to G.P laughed done bloods nothing showed up so he told me it was all in my head and there was nothing he could do for me. This lasted 7 wks or so.
About 7 weeks ago I started having very bad halo’s and double vision again, with really bad cognitive difficulties. Started forgetting things and making mistakes, at work. Cognitive ability had recovered enough since the last episode that I could work. But had I begun to notice that I was making mistakes with money and was forgetting things again.
Went privately to bons secours in Dublin, to see a (Neurologist) was taken in had mri came back clear. Saw Psychiatric consultant for 2 hours who said I was one hundred percent. Had all kinds of tests done except M.R.I of c spine and LP.
This has cost me allot of money, Went back to see neurologist who flicked the results of the e.e.g and M.R.I across at me saying he could’nt find anything. And that my Problem was psychosomatic, this coming from someone who has never done a neurological examination of me. As part of been off from work I had to see the company medical doctor who did do neuro exam and said I definitely showed signs of M.S. And that I should prepair myself to that end. I asked her if it could be psychosomatic and she said the deep muscle twitching in my back are not something my mind could do. Also she found a tremor in both arms.
My wife who is medically trained has also felt muscles twitch and go into spasm in various parts of my body. If I walk or do any exercise my arms and legs become extremely heavy and my afternoons are filled with fatigue that I have never experienced in my life. Numbness and lack of sensation, in my hands and feet when I drive. Neurologist says there’s to many symptoms to be M.S. And that I need to see two of his expensive friends a psychiatrist and Neurologist , I feel its a bit of money spinner. And I know my minds ok and also my wifes.
can i have clear tests and still have M.S
How do I start this e-mail well to begin? Last year I suddenly got this episode of really itchy hands with confusion and the feeling of been drunk. Went to my G.P who told me I had stress. At this time I started having double vision. Was hospitalized in the local hospital and was discharged with sinuses. (MRI and ct brain fine)
Saw E.N.T Consultant all fine ECT.
During the twelve months had an episode of urine urgency, went to G.P laughed done bloods nothing showed up so he told me it was all in my head and there was nothing he could do for me. This lasted 7 wks or so.
About 7 weeks ago I started having very bad halo’s and double vision again, with really bad cognitive difficulties. Started forgetting things and making mistakes, at work. Cognitive ability had recovered enough since the last episode that I could work. But had I begun to notice that I was making mistakes with money and was forgetting things again.
Went privately to bons secours in Dublin, to see a (Neurologist) was taken in had mri came back clear. Saw Psychiatric consultant for 2 hours who said I was one hundred percent. Had all kinds of tests done except M.R.I of c spine and LP.
This has cost me allot of money, Went back to see neurologist who flicked the results of the e.e.g and M.R.I across at me saying he could’nt find anything. And that my Problem was psychosomatic, this coming from someone who has never done a neurological examination of me. As part of been off from work I had to see the company medical doctor who did do neuro exam and said I definitely showed signs of M.S. And that I should prepair myself to that end. I asked her if it could be psychosomatic and she said the deep muscle twitching in my back are not something my mind could do. Also she found a tremor in both arms.
My wife who is medically trained has also felt muscles twitch and go into spasm in various parts of my body. If I walk or do any exercise my arms and legs become extremely heavy and my afternoons are filled with fatigue that I have never experienced in my life. Numbness and lack of sensation, in my hands and feet when I drive. Neurologist says there’s to many symptoms to be M.S. And that I need to see two of his expensive friends a psychiatrist and Neurologist , I feel its a bit of money spinner. And I know my minds ok and also my wifes.
can i have clear tests and still have M.S
ya..had an mri...thanks for your post-made me feel better!
i think there are slow to give you a definite answer,Because its such a life changing event.As for me at work i deal with large sums of money and also have a awful lot of responsiblty. I was told by the company doctor, that if M.S is confirmed i will be looking for a new job. As i would'nt be insurable in my cuurrent role. I was'nt you ignoring by the way, as for the lesions i hear they come and can disappear.M.R.I under contrast shows them up allot more so maybe ask for this. Also some lesions are present in so-called quiet parts of the brain. the pee thing i had as i said for seven weeks, you would relieve yourself only to want to go again really bad immediately very embrassing. My G.P laughed at me about this up into my face saying its IN YOUR HEAD. His not my Doc anymore and i would tell anyone if you have a doubt go elsewhere.
Anyhow i wish you all the best and if theres anything you would like to chat about feel free to contact me.
Anyhow i wish you all the best and if theres anything you would like to chat about feel free to contact me.
Ive been ignored before but this is ridiculous.Every time I write something I get nothing in return...
Well contacted the national ms charity here, They were brilliant arranging for me to see a second Neurologist. Also there nurse said my history certainly does look like M.S. She was shocked to here that my Neurologist had'nt done a Neurological Examination,but has great fate in the guy there arranging for me to see now. Will keep everyone posted and once again thanks for the advice it means allot.
I have been diagnosed with fibro.have low b12..sister has lupus..eyes hurt real bad..swelling in extremities..rls..hypothyroidism.Can hardly walk sometimes-and my mri said I have white lesions on 1 side;doc said I dont have ms cause its only on 1 side.Sending me to fibro/pain managment doc.Im here in Canada and ya its paid b ut you cant pick who you want to see.what do you guys think?-oh ya..blisters on my scalp and pee every 15 minutes[NOT LYIN]
Hi, This is harleygirl1211 and new at this site. I just happen to read your page. Just today I went to a site called Milo's Clinic, and they are suppose to have the best specialist in the world on that. I have degenerative lumbar disc disease, and have always asked the doctors if they have found any lessions that looked like M.S. because my father has it and was diagnost when he was 36, now 69. He has put up a good fight, but now is in the wheel chair. If this is what you do have DON'T GIVE UP. Years ago when they told my dad it wasn't hireditary(mispell) well now for some reason they think it is, and along with what I already have I have alot of the symtoms too. Maybe I'm just thinking I got more things wrong with me than I do, but it sure is fishy to me that me and my dad has got so many things in common. Like I said on my page Doctors are human too and I have been through it sounds like as many as you have and they didn't find mine until 4 1/2 years after laying in bed the whole time. But maybe I have it maybe I don't who knows. But I only hope I can last as long as my dad has and I have never heard him complain as much as he has been through, except for feeling bed that he can't do and help to things around the house like he use to could but one day we'll all be like that if we live long enough, good luck, and I hope it doesn't take you much longer to find out what is wrong, because that is VERY DEPRESSING ITSELF!!!!!
Thank you very mush for your help, i found alot of information on that link. Thanks again your a rea Star.
Dear Momento Man,
www.medicinenet.com/multiple_sclerosis/article.htm
Plez read what the above website says about Multiple Sclerosis. It is an excellent website for lots of diseases, their info on MS is eight pages long, and will tell you everything you need to know about that health issue. I am so glad I can help you, and while I am not a physician, I personally think MS is what you got, and I agree with your work doctor who thinks you have MS, too. Ask that work physician to refer you to HIS choice of an expert in MS, and forget about your other neurologist.
When you go to see the new neurologist, bring your wife with you, so she can say how she sees and feels your muscles rippling. Bring any records you have on hand with you. He should do the following three tests: An MRI of your entire spine to look for plaques there, an evoked potentials or EV test that uses electricity to see how your neuromuscular system is doing, and a spinal tap to look for antibodies. And yes, you can have a clear MRI of the brain and still have MS. There are a few other tests that he can do besides the ones I have taken from the above website link.
Once that doc has results of the above tests, he'll want to do a second MRI (if he found plaques in the first one of your spine), to see if there are expected changes. With all that testing, plus your history of some very classic symptoms of MS, which are your vision problems, muscle spasms, memory problems, and urinary urgency, he should come to the conclusion that you do indeed have MS. Of course I could be wrong, but your evidence just in symptoms is very strong.
Fortunately, there are treatments, and sometimes MS just naturally goes into remission from time to time (which happened to you), and many people live long and productive lives despite having MS. On the other hand, MS symptoms can become quite severe at times, so you and your wife will need to team up on this thing, and also you two can look into having assistants come in to relieve her, so you won't be swamped with problems, if things get bad for a while.
Also, I'm not sure how Great Britain's health care system works, since you were seen in Dublin, but most of this sort of care with MS should be covered, and also you should apply for and receive monetary benefits to help take the place of your income whilst you are ill and simply cannot work. Keep in mind that making money is not all a man is for.
I think if I had to choose a major neurological problem to have, that would be it, except for the weakness in the body that sometimes happens with MS. That can be real frustrating to deal with when you are used to freely jumping up and doing lots of fun activities. But again, you and your wife can get creative about that sort of thing, and in the end, this will bring you two closer together and make life more interesting (I paint and garden and play guitar to pass the time, for example). I wish you all the best, and get that diagnosis as soon as you can from your work doctor's referral neurology expert in MS. (And if your work doc doesn't know who to refer you to, there are foundations and organizations for MS that can hook you up with the best docs in your area, which are in that link I gave you.)
By the way, I don't have MS, rather I have many neuromuscular and mental problems associated with breaking my back in three places in a car wreck, so I have some idea of how much life can change in an instant. But I have excellent doctors, altho took some doing to get all that lined up, and I have real good medicines to keep me comfortable, and I also have a supportive husband who understands me and keeps my attitude good.
GG
www.medicinenet.com/multiple_sclerosis/article.htm
Plez read what the above website says about Multiple Sclerosis. It is an excellent website for lots of diseases, their info on MS is eight pages long, and will tell you everything you need to know about that health issue. I am so glad I can help you, and while I am not a physician, I personally think MS is what you got, and I agree with your work doctor who thinks you have MS, too. Ask that work physician to refer you to HIS choice of an expert in MS, and forget about your other neurologist.
When you go to see the new neurologist, bring your wife with you, so she can say how she sees and feels your muscles rippling. Bring any records you have on hand with you. He should do the following three tests: An MRI of your entire spine to look for plaques there, an evoked potentials or EV test that uses electricity to see how your neuromuscular system is doing, and a spinal tap to look for antibodies. And yes, you can have a clear MRI of the brain and still have MS. There are a few other tests that he can do besides the ones I have taken from the above website link.
Once that doc has results of the above tests, he'll want to do a second MRI (if he found plaques in the first one of your spine), to see if there are expected changes. With all that testing, plus your history of some very classic symptoms of MS, which are your vision problems, muscle spasms, memory problems, and urinary urgency, he should come to the conclusion that you do indeed have MS. Of course I could be wrong, but your evidence just in symptoms is very strong.
Fortunately, there are treatments, and sometimes MS just naturally goes into remission from time to time (which happened to you), and many people live long and productive lives despite having MS. On the other hand, MS symptoms can become quite severe at times, so you and your wife will need to team up on this thing, and also you two can look into having assistants come in to relieve her, so you won't be swamped with problems, if things get bad for a while.
Also, I'm not sure how Great Britain's health care system works, since you were seen in Dublin, but most of this sort of care with MS should be covered, and also you should apply for and receive monetary benefits to help take the place of your income whilst you are ill and simply cannot work. Keep in mind that making money is not all a man is for.
I think if I had to choose a major neurological problem to have, that would be it, except for the weakness in the body that sometimes happens with MS. That can be real frustrating to deal with when you are used to freely jumping up and doing lots of fun activities. But again, you and your wife can get creative about that sort of thing, and in the end, this will bring you two closer together and make life more interesting (I paint and garden and play guitar to pass the time, for example). I wish you all the best, and get that diagnosis as soon as you can from your work doctor's referral neurology expert in MS. (And if your work doc doesn't know who to refer you to, there are foundations and organizations for MS that can hook you up with the best docs in your area, which are in that link I gave you.)
By the way, I don't have MS, rather I have many neuromuscular and mental problems associated with breaking my back in three places in a car wreck, so I have some idea of how much life can change in an instant. But I have excellent doctors, altho took some doing to get all that lined up, and I have real good medicines to keep me comfortable, and I also have a supportive husband who understands me and keeps my attitude good.
GG
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