Neurology Community
Need Medical Advice
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Need Medical Advice

I have had Tolosa Hunt Syndrome for over 1 year now. Initial response to prednisolone, however still some symptoms; not in severe pain. On 15mg of prednisone for the last 8 months.
Is there a medical expert on THS?  (anywhere in the world).
Related Discussions
-8 Comments Post a Comment
Blank
Avatar_f_tn
Expert on THS, I would be shocked if there was one, because with the expection of the Neurologist who told us about, each Dr we have come in contact with (including the Neurologist who is currently treating my husband) has never even heard of this......The only other treatment I have read about is radiation. My husband started having symptoms in June 2008 and started on prednisone in July of 2008. He is still on 40mg daily. He tried stepping down a few months ago by only 5mg and the pain started to return. His Dr wants to repeat the MRI (even though it has never showed anything), but first wants him be off prednisone completely for 2 weeks... we haven't attempted that yet.

Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1416285879
Blank
selmaS
Allentown, PA
338416_tn?1413581329
Blank
jensequitur
Fort Worth, TX
10389859_tn?1409925468
Blank
Foggy2
352007_tn?1372861481
Blank
LisaJF
1780921_tn?1384615710
Blank
flipper336
Chandler, AZ
Avatar_m_tn
Blank
Ball123