PLS/ Primary Lateral Sclerosis

I was diagnosed with Primary Lateral Sclerosis in 1992 and rediagnosed in 2000.  In 2005 I had an event where the pain became unbearable and spent 2 and 1/2 weeks in ICU and remember NOTHNG because of the drugs. I had to learn to walk with a walker then improved to a cane.  

Has anyone else had such an experience?  I would like to hear from you.  I do not have regular pain now and my legs are still weak and have been told I have a neuropathy to top it off.  My right foot is 1/2 numb.  

Is there any help out there?

[EWynn]

I was tentatively diagnosed with PLS last fall after two years of declining coordination, strength, speech, etc.  I also have advanced essential tremor and neuropathy in my feet--my feet are numb.  I have no pain and on no meds.
EWynn