Hi Worried Mom,
Not sure if you are familiar with ihrfoundation.org or not but it is the only organization I know that is currently trying to find a cue for IIH/PTC. If you have not done so I encourage you to check it out and register your daugther.
BTW, I have IIH and split my time between 2 homes at different elevations (sea level and 5500 feet) therefore different pressures and I have yet to draw any conclusions that my headaches are worse at one home or the other. However it is "ideopathic" and there is still much to be learned so that is why I encourage you to register.
Good luck.
TJ
Thank you!
Even though this is a fairly new diagnosis for us, it really seems that the changes in the barometric pressure really affect her pain level.
I really hope one day they can do more research for PTC because it seems so many suffer even with treatment.
Hi,
Changes in weather and barometric pressure have been known to trigger headaches. In fact there is a strong link between changes in barometric pressure and migraines.
No direct link has been establishes as of now between changes in barometric pressure and Intracranial pressure.
However some patients with pseudotumor cerebr have complained of worsening of headaches with changes in barometric pressure.
Regards