Pseudo Tumor?

[bonnie000]

My 17 year old daughter had a benigh pineal brain tumor removed in Dec. 07 She  now has pseudo tumor the doctors would like to put a shunt in her back and run the tube in her stomach or do the Optic nerve sheath fenestration. We need to make a decision on one we are trying to see which procedure is best.

She has severe headaches, dizziness, blurred & double vision, nausea, and pain with eye movement. She also has problems with motion examlpe riding in a car. She also gets ver tired and sleeps alot. She is on meds. but they help some but never completely relieve her pain. She wears contacts but in the last 2 weeks when she wears them very long her eyes get very painful and red. We have even got new contacts and it stills does it.

Does anyone know when you have pseudo tumor does it cause problems when you wear contacts?

Also can anyone tell me which is better a shunt in her back and run the tube in her stomach or do the Optic nerve sheath fenestration?

[jo150408]

Do they know if there was damage to the pineal gland when they removed the tumor?  I have been diagnosed with a pineal cyst which has all the symptoms of psudotumor.  They treated me for psudotumor all last year with no results.  Now they find on a new MRI that there is a large pineal cyst that could be causing all the problems.  I would have them do another MRI to verify that something did not grow back after removing the tumor.  

As far as which is best, I think I would do the sheathing first to see if it works.  It seems to be less invasive, but I think it is not as permanent a solution.  My surgeon would only do it if I was losing periperal vision.  The shunt requires much more invasive surgery.  My surgeon told me that if it worked, it was great, but if it didn't, it could cause all kinds of problems including infections and would be worse than doing nothing at all.  They can also have problems regulating the pressure.