Neurology Community
Sarcoid of Brain?
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Sarcoid of Brain?

41 yr female.  (please be patient as my case is complicated)  Approx. 1 month ago had sudden extreme episode of vertigo.  Felt like someone flipped me upside down-lasted about 2 mins.  Continued to happen every few days for 2 wks.  Then began happening daily for wk.  Now happening 5+ times/day, along w/constant nausea & unsteady feeling.  Past 3 days I now stumble often to my right & when I try to look w/eye balls to my right or down -my eyes jump around.  Also been getting sharp pain in head that come & go.  And past 2 days while resting, my last 3 fingers on right hand have gone numb couple times.  2 wks after this 1st started I cld my PCP & he just called in some antivert & zofran for symptoms (only helped a bit).  Also...week ago started having episodes of incrsd heartrate (at rest even) w/chest pain & some blurred vision.  PCP had me wear 24hr monitor & said I had many epsiodes, even 146bpm during sleep, so he put me on propranolol beta-blocker (still having them).  I was also told month ago that I have nodule on thyroid (although TSH was OK).

After feeling extremely ill, back in April I was dxd (via biopsies) w/sarcoidosis of mediastinal/hilar lymphnodes (all enlarged 2 to 3cm each) and also in left ulnar arm bone.  Was on prednisone for 7+ mos.  Been off for 1 month. Due to try Imuran next.  My labs/tests also indicate that I have another auto-immune disease, but docs are still trying to figure out which one.  My other symptoms (fevers, night sweats, joint pain, fatigue, chest & breathing) have all gotten incrsgly worse in past 2 wks too.

I went to local ER Sunday afternoon.  They checked TSH & CBC, did EKG, brain CTscan & chest xray.  Said all was OK.  ER doc recommended I see my specialists right away to get brain MRI to look for lesions, etc and also get CTscan of chest or heart MRI.  I called rheumatologist & cardiologist today, but never heard back from them.

Although I have many symptoms that are concerning, my BIGGEST one is the stumbling/eyes/dizziness/numbness.  Could this be indication of neuro-sarcoid?  What do you recommend I do - who do I go to - what tests would be most helpful?

I'm in need of some guidance & can't express enough to you my gratitude for your time & input. -thanx JAYNE
Related Discussions
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
144586 tn?1284669764
Blank
caregiver222
11079760 tn?1449081557
Blank
cjtmn
Minneapolis, MN
1780921 tn?1462244109
Blank
flipper336
Queen Creek, AZ
209987 tn?1451939065
Blank
tschock
AB
4760166 tn?1398360913
Blank
The_beat_goes_on
TX