My fatigue started in 1989...I was 30. I'm 51 now, female. I had bouts of having to be in bed...no real "illness" but just so exhausted I could not care for my kids. This went on for about 10+ years...I lived in WA at the time.
After moving back to AZ in 2001, I began to experience pain in my hands and arms, and lower legs. In addition, I have had migraines since I was a teen. Had a gastric bypass operation (open surgery) in 2005; lost 100 lbs. After gaining more weight, I had a hernia repaired, and at the same time had my sm intestine bypassed more (ERNY)...but it seems that the surgeon OVERLY bypassed the sm intestine. Hence, I suffered severe malabsorption thru all of 2009. Had to have my gall bladder removed during that year. After serious medical testing, I had the ERNY reversed by a very competent surgeon. The pain that I had suffered since about 2001 would come and go thru all these years, accompanied by fatigue, pain, irrational moods, muscle twitching, worsening vision (including macular degeneration and now cataracts). When I stand, i get dizzy/lightheaded. 2x last year i suffered with bouts of near black-outs accompanied by R facial numbness. My R ear feels "stuffed" yet all exams show nothing there...testing has shown hearing loss in both ears. I have developed Raynaud's. I also developed Hemolytic Anemia during this time of malabsorption.
After this last surgery, Dec 2009, I am suffering with severe SEVERE fatigue and body pain. I have had to quit work due to the inability to function any longer. My liver enzymes are elevated, yet negative Hep test. Negative lupus.
Today I saw a neurologist, but he is perplexed. I am desperate. I cannot work, yet without a diagnosis, I cannot prove that I have an illness that will allow me to collect SSI or other $ to pay my bills. Any suggestions would be appreciated.
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