Strange Head Sensation and symptoms - Migraine/epilepsy/something else?

[woody198900]

If you could take the time to read this and then give me your thoughts, hopefully some new theory could emerge:

it all started abouth 2 years ago, when I was lying in bed in the morning and in that 'about to get up' and 'still drowsy, lying in' stage I would have an odd sensation in my head. Sort of like a head rush, but more overpowering. How I would imagine a seizure to feel like if it was only in the frontal lobe of the brain (and not in the rest of the body).When awake I would never have these, and they happened very very rarely.

The next stage was when I was sitting down at the computer, and I experienced the same sort of sensation as above, but while i was awake. and much much less intense. again this happened rarely.

After this they became more frequent when awake. Then after a weekend Drinking with friends, the 'Hangover' was not regular headache, but these "odd rushes" (that sometimes feel like a flutter above the eyes, but sometimes feel like a muscle cotraction starting off softly contracting then intenselt contracting then softly then finish). These would happen once every 20 seconds. then next stage after having these frequent 'rush' feelings I gradually began to see vast amounts of eye floaters and eye flashes. untill flashes seemed permanent. Muscles would twitch a lot. I will get a feeling of swaying within my own head, even if Im not swaying physically. sometimes when a 'rush' occurs i feel as if my head is pulled backward. Sometimes as if one side of my brain is heavy, then the other side becomes heavy etc. I catch myself starring into space often, just at one place, losing focus and 'looking through' the object. and I feel withdrawn from things at the moment, as if I have no emotional attachment to them, I just see the things, as if I cant properly absorb the information (another example is - recalling past events, but the normal emotion that goes with memories doesnt seem to  be there). Would have some cold patches appear all around my body, like pins and needles, but feels almost like very fine cold water on small patches of skin. NONE OF THIS IS PAINFUL

(* Note - the word rush is not at all like a head rush when getting up. feels more electrical, or muscular orientated)

Lately Im having the suspicion that the 'rush' feeling has a connection to my eyes, sometimes my eyes shake when one comes about. eyes are never drawn up to the skull like in a fit. This correlates with the eye flash disturbance etc. Some Optic Nerve abnormality, or due to the swaying feeling possibly some brain stem problem (which is the center for eye and ear nerves). Or Epilepsy.

I went to many Doctors (6 or 7) and all of them had no idea. saying it could be some sort of migraine. No tear in the retina. Epilepsy hasnt ever come up. symptoms are always described as strange.  

Any thoughts would be much appreciated, or if anybody has similar symptoms.


Additional information about me - my posture (neck) is a little hunched, could this be causing some sort of tension that causes the above? I use the computer a lot. never had a serious illness. have smoked marijuana before. not a lot though. did binge drink, but havnt since symptoms

EMAIL - ***@****

[netlyn5015]

I too have experience this just the other night when I went to fall asleep on my back and this has happened before when rolling over on my back but not since 2010 and then bam! Now in 2015 just last night?!! What the heck?!! Im 50 and going through some changes and chalk it down to hormonal changes poss. I did go to emerge in 2010 because it gave me projectile puking and could hardly stand and my son took me to ER but the CT scan showed all clear for an anuriesm or anything like that. It seemed to happen only when i go to lie on my back and I can explain it as if my brain in the back of my head is swirling around in my skull. It is frightening and weird. Ive read that going to Otologist can correct this if in fact it is something that is called BPPV and means that is off balance and the crystals in your inner ear are off and usually with one treatment of certain movements to be done in his office corrects with just one visit usually. gosh hope you get better and hope I do tool this is so awful and I feel anxiety extreme now and tired from worry... :(

[netlyn5015]

Hi Debdeb87 I too have experience this just the other night when I went to fall asleep on my back and this has happened before when rolling over on my back but not since 2010 and then bam! Now in 2015 just last night?!! What the heck?!! Im 50 and going through some changes and chalk it down to hormonal changes poss. I did go to emerge in 2010 because it gave me projectile puking and could hardly stand and my son took me to ER but the CT scan showed all clear for an anuriesm or anything like that. It seemed to happen only when i go to lie on my back and I can explain it as if my brain in the back of my head is swirling around in my skull. It is frightening and weird. Ive read that going to Otologist can correct this if in fact it is something that is called BPPV and means that is off balance and the crystals in your inner ear are off and usually with one treatment of certain movements to be done in his office corrects with just one visit usually. gosh hope you get better and hope I do tool this is so awful and I feel anxiety extreme now and tired from worry... :(

[lachy262]

Hi i am a 13 year old male, i have been getting theses strange sensations going from almost the front of my brain going to the back of my brain and this feeling sort of feels like a wave of indescribable sensation. My eyes also play up a little, for example: I just had my sensation and i jumped on the forums to found out what this sensation was as i was reading about 5 minutes in my eyes started to hurt and they became moist and i had to blink rapidly. I personally don't know what the cause is and i haven't told anyone before and i never been to the doctor about this. Can anyone clue me into whats causing this phenomenon in my head, and is it something i should worry about?

~lachlan
Email: ***@****

[Jasperlia]

Hi Blue90,
This is a good description, I was struggling to explain the wired feelings I've been getting. I have just weaned myself off sertraline (Zoloft). I did it very slowly as the doctor suggested, maybe this is the cause in my case, I was not taking it for anxiety but to try and alleviate menopause induced sleeplessness ( it did not work wish I'd never gone on it now).
Feeling very concerned about these odd feelings and very glad to have other people to communicate with.
Jo

[symonnechaveiro]

What was the name of your problem.

[Pmotts12]

Glad to see I'm not alone.  Past 6 months getting headaches. Feels like rubber bands in forehead. They come more often now.  I to get this swoosh , tingle feelin in my head.  90 percent of the time though it comes on while I am sitting. Last about 10 seconds. Very uneasy feeling. After I feel like I have to get up and go outside or stay busy or I feel something bad might happen. It has been going on for 6 months or more.  I can go weeks without it happening and then just out of the blue it happens. Sometime more than once a day but after it happens my day is ruined. I stay light headed the rest of the day. Headache then comes on after usually and will last most of the day.
   Had Mri.   Found lesions through white matter of brain. Neurologists don't seem to concerned but doing more blood work. They know it's not MS. Does anyone have any insight ? They are pushing to try and see some migraine meds.  My headaches are not pain but usually pressure.  Constant.