Hi and welcome to MedHelp.
U may find more members with a syrinx (syringomyelia) in the Chiari Malformation forum. And u do not have to have a Chiari DX to join, as there are many related conditions that we all share and the Drs we see treat.
http://www.medhelp.org/forums/show/257?camp=msc
What I would suggest is getting copies of the MRI and report when u go for the MRI....hope u join us in the Chiari forum,