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Treatment for pseudotumor cerebri

by WorriedMom15, Dec 05, 2008 06:17PM
I am having trouble finding out what is a safe maximum dosage of Diamox for psuedotumor cerebri. When I had asked my daughters neurologist this question, she said there is no maximum dosage which I found hard to believe that there wouldn't be a max dose on any medication.
My daughter is 15 yrs old and had been prescribed a total of 2500 mg per day divided into 3 doses.
Does anyone know the max dose for diamox?
Thanks!
Member Comments (2)

by Neon8RN, Dec 06, 2008 04:59PM
All of the information I have come across says this:

Adult Dose          500-4000 mg/d PO bid/tid
Pediatric Dose     25-100 mg/kg/d PO; not to exceed 2 g/d

Hope this helps. Hard to believe that your daughter's doctor was so unconcerned about how much she is prescribing her. Children are not just little adults, their body chemistry is different, and therefor, medication administration must be different. Plus, prescribing too much medication can have serious effects on your liver and kidneys.

by WorriedMom15, Dec 13, 2008 11:01PM
To: Neon8RN
Thank you for your response. My daughter had been hospitalized this past weekend and a different neurologist will be taking over her care. I am glad because he seems much more knowledgeable about the treatment she needs. He also decreased her dosage of diamox to 2000 mg per day. She was also sent home on zanaflex, neurontin & phenergan to help with her pain. Previously they did not give this poor girl anything for pain and when I would call in about her increasing headaches & vomiting, they would just increase her diamox.
But I think with this new Dr. she will be treated more appropriately. This week is the first time in months that I have seen life back in her eyes!

Thanks again!
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