Twitching and scared!

[ahmax]

I am concerned about twitching. I began with twitching in my right calf last July (14 months ago).At the time I also had a few other twitches in my lower back and neck. I had an appt  with a neurologist in September and an EMG and NCS in October 2011. Both exams were normal.I have also had labs for levels of calcium,magnesium, etc...all of which were with in the normal range.My B12 was 352 which they said was borderline . My concern continues to be ALS. For the past 14 months the twitching has spread all over.I twitch in both legs,calves,quads, arms ,back ,stomach , hand, feet, eye,...you name it . I am so plagued by ALS anxiety. I have no weakness that I can see but i keep twitching. Would ALS be likely to be just increasing twitching for a year or can I relax?

[Dagun]

Hi Ahmax, I´m sorry you´re going through this. I twitch a lot also along with many other symptoms. I´m of course no doctor, but from what I have read and learned since my symptoms started June 2010, this does not sound like ALS. I was thinking the worst also at first, but now I´m pretty calm about this.

If you let the anxiety get the best of you, you could get worse just because of it, also then doctors are more likely to think it is just the anxiety causing this. So try to not think the worst, and go see a neuro again, because if there is a year since last you saw him, he might want to do more tests.

Good luck and take care,
Dagun  

[ahmax]

Hi Dagun,
Thank you for your kind words . I am sorry to hear that you have experienced all of your symptoms as well. Do the  Doctors seem to have any idea what is going on with you?It can be so very frustrating. I have lived with chronic issues that have remained a mystery to the med people....mostly autoimmune in nature. I am beginning to wonder if this twitching is related or just another one of those things they can't explain. There is so much that they don't know...it is just very anxiety provoking when you are the mystery.
I hope you are feeling better.

[Dagun]

Hi again :), no they don´t really have an idea, because my EMG test was normal and blood tests also so I´m now waiting for an MRI of my spine. I had one of my head last year, that did not help in diagnosing me. I think the nerve system is just so complicated, but I hope if you go for more testing they will figure this out for you.

Best of luck to you,
Dagun