I'm very sorry to hear that your husband is diagnosed with bulbar ALS.
My tongue- tip twitches also too and now I´m very afraid to ALS.
Please can you tell me if the twichting was constantly and always wenn he open his mouth? I don`t know what I should do now. I know, I have to go to a neurologic, but so early he can`t diagnose ALS. Sorry vor my bad english, I`m from germany....
In 2008 I noticed the tip of my husbands tongue twitching. My husband was not concerned or embarrassed and when I pointed it out to his doctor (not a neurologist) he laughed. Last friday my husband was diagnosed with bulbar onset ALS. He is now having a hard time speaking and swallowing. It has been 8 years but now he has it and I believe that was his first sign. don't ignore this.
Thank you for your post. I appreciate the information and do have an appointment to see my PCP first thing in the morning.
Thank you for the answer. It has helped with some of the anxiety. I do have an appointment to see my PCP first thing tomorrow.
Hi,
Your query related to ALS.
sometimes called Lou Gehrig's Disease, or Maladie de Charcot disease.
progressive, usually fatal, neurodegenerative disease
caused by degeneration of motor neurons
The earliest symptoms may include twitching, cramping, or stiffness of muscles; muscle weakness affecting an arm or a leg; and/or slurred and nasal speech.
In bulbar onset ALS, about one fourth of these patients first notice difficulty speaking clearly. Speech becomes garbled and slurred. Nasality and loss of volume are frequently the first symptoms. Difficulty swallowing, and loss of tongue mobility follow. Eventually total loss of speech and the inability to protect the airway when swallowing are experienced.
But do not jump on to any diagnosis yourself. Kindly do consult a physician.
Hi.
The initial symptoms of ALS may be different between persons afflicted with this condition although most patients (about 60%) experience muscle weakness as the first symptom.
That being said, the tongue tip twitches/fasciculations is unlikely a presenting symptom of ALS unless there is presence of markedly slurred or absent speech, and difficulty in swallowing and moving the tongue secondary to atrophy and weakness.
Other possible causes of tongue twitching include pinched nerve, benign fasciculation syndrome, thyroid gland overactivity, etc.
You should consult your physician about this if you are overly concerned about it.
Hope this helps.