Hi i had brain surgery about 5 yrs ago chiari malformation surgery i had speedy recovery i was feeling great up in till this year i started getting serve headaches , unsteady walking, off balance , up and down mood swings and now i just noticed weakness in my legs. I went to the er they did a CT scan comes to find of out my lateral & thrid ventricle are moderately dialted , hydrocephalus cannot be excluded. Followed up with the neurologist this past wednesday he didnt tell me much but that he agrees i got hydrocephalus and i probably need surgery and he will refer me to a neurosurgeon and sent me on my way. Im terrified i need answers what happens next??.. In a case like mine
Hi, you should see an neurologist as soon as possible and have a mri done so that he can read it, paying special attention to the size of your ventricles. NPH ( normal pressure hydrocephalus) caused by a high volume of spinal fluid produced by the ventricles. I have just been through this to the point that I could no longer walk, think right, I lost movement in my aems and was wheel chair bound. I found a Dr. through the national Hydrocephalus Foundation in Lakewood calif. 1-888-857-3434. Within 48 hours of my surgery to put a shunt in my brain I was walking, thinking and doing things that I have not done in months. PLEASE GET Checked RIGHT NOW!!!!!!!!!!!!!!!!! Before you get worse. LBSTOTTS
thank you for your post. you're very true! one of my other specialists recently went over my mri during an appointment and told me the enlarged ventricles are not normal, so she referred me to a neurologist, who i see in a couple weeks. i just noticed on an mri report from 2004 that i had "mild ventricular presence," so i'm wondering if this has been progressing and the cause of my bad headaches, etc. we'll see soon enough. thanks again!
Hi I am not sure why you would feel you are insulting your GP he is a GP not a neuro and if he gets annoyed this is your health not his. So please stand up for yourself. Do you have any walking difficulties besides the running issue? I know that enlarged ventricals can be a sign of Non pressure hyrdorcefalus. You seem to have some of the signs of you should really go see a neuro who specializes is this. One major sign is headaches, gait problems (balancing) and other symtoms. Not saying this to make you nervous just someone who is trying to offer you help in most especially taking care of your problems. I am not a doctor nor nurse but seen commercials advertising the non pressure hydrocephalus on t.v. and your posting described very similar problems. especially the enlarged ventricals. I wish you well and remember if the GP gets insulted he/she needs to be ditched no one should get insulted when it comes to someones heatlh as nothing is more important than a persons own health.